Every Breath You Take: Tips for Respiratory Health

It’s cold and flu season so I asked a respiratory therapist I know — Lee Guion — to offer some guidance. Here are Lee’s 7 Tips for Respiratory Health which are critical for those with a condition that causes weakened muscles:

  1. Attend a Multi-Disciplinary Clinic
  2. Get the flu and pneumonia vaccines
  3. Treat upper respiratory tract infections
  4. Hydrate
  5. Maximize your nutrition
  6. Exercise — especially disciplines coordinating the breath with movement
  7. Sleep Well

 

But this list is only a list. You should listen to the podcast.

There are many online videos to guide you in a practice combining breath work and movement but here’s one from the Niroga Institute for people with asthma.

Here are Homework Assignments for the rest of 2017:

  • Take less than 5-minutes to complete this online survey. I look forward to your feedback on the podcast for next year’s episodes. As an additional incentive, there’s a drawing for a Self-Care Package.
  • Listen to previous podcast episodes about everything from medical cannabis to mindfulness meditation as well as fermentation.
  • Soon there will be cool videos here.
  • Check out this documentary film, Unrest. It’s a “story of love and loss” about people diagnosed with myalgic encephalomyelitis (commonly known as chronic fatigue syndrome).

 

 


Pirate as a Disability Action Figure: Disability Awareness Month

 

Professor Catherine Kudlick, of San Francisco State University, directs the The Paul K. Longmore Institute on Disability and the annual SuperFest International Disability Film Festival.

Born blind, Catherine had numerous corrective eye surgeries and now lives with nystagmus, a condition of involuntary eye movement.

Learn about this year’s annual film festival and a new accessibility feature — audio description — and how pirates can be a tool for teaching students about disability.


Passion: Motivation to Move through the Bad Stuff and Experience Joy

Recently I attended an annual patient conference and had a conversation which served as a catalyst for a couple of blog posts and this podcast episode. What advice do you give someone experiencing apathy and a lack of motivation? How do you cultivate a passion which can make it easier to move through the challenges of living with a chronic health condition so you can still experience joy?

There are no easy answers.

Featured in this episode are three people I know who have shared their passion with me. Mindy brings her love of dance to our myotonic dystrophy community.

 

Hazel shares her knowledge and experience with service dogs to those with multiple sclerosis as well as other chronic health conditions. And James helps his co-workers and friends experience the Totality — and other celestial happenings.

To learn more about Mihaly Csikszentmihalyi and the flow concept, here’s a TED Talk, and the books I read: Flow: The Psychology of Optimal Experience  and Creativity: Flow and the Psychology of Discovery and Invention.


Multiple Sclerosis & Mindfulness Meditation

Gareth Walker, in northern England, works as a police officer and has progressive multiple sclerosis. His daily practice of mindfulness meditation enables him to navigate the physical and emotional difficulties of living with a chronic health condition.

Walker was first introduced to a mindfulness practice when reading Wherever You Go, There You Are: Mindfulness Meditation in Everyday Life by Jon Kabat-Zinn. Walker is featured in Jo Marchant’s 2016 best-selling book, Cure: a journey into the science of mind over body.

To learn more about Gareth Walker and his practice, visit his website, Everyday Mindfulness.


Preparedness is Universal: Planning for a disaster if you have a chronic illness, physical, developmental, or intellectual disability

September is National Preparedness Month. If you have a chronic health condition, an injury, or are physically, developmentally, or intellectually disabled there is additional preparedness planning you’ll need to do in the event of a natural (hurricane, earthquake, flood) or other type of disaster (terrorism).

L. Vance Taylor —Chief, Office of Access and Functional Needs at California Governor’s Office of Emergency Services, talks about his role in emergency management for the State of California as well as his role as a person with a physical disability (Limb Girdle muscular dystrophy).

Additional Resources to help with your personal planning and preparedness can be found at the following organization’s website:

American Red Cross

FEMA

Ready.gov


Balance & Falling: The 1st Step

Let’s explore balance and falling. Erica Pitsch, PT, MPT, DPT, NCS, of University of California, San Francisco, talks about the various components of balance. You can learn more about the BalanceFit classes she teaches and here you can view her presentation at UCSF’s mini medical school.


Talkin’ Tech with a Software Engineer

That software engineer is Chris Schlechty — a fellow member of the Muscular Dystrophy Association’s National Community Advisory Committee. We talk about home automation, on-demand services, apps, self-driving cars, smart devices, and Seattle’s microbrews.

Check out the DO IT Center which is dedicated to empowering people with disabilities through technology and education. Chris has been involved with this organization since he was in high school.

 


Do It for Science: End of Life Decision-Making (# 1)

 

Laboratory technician at work.

If you’d like to plan for the future and bring peace of mind to yourself and loved ones, you can engage in end of life decision-making while you’re still of sound mind and body. In this episode, Katharine Hagerman, PhD, at Stanford University talks about biobanks. If you know nothing about biobanks, give a listen and learn.

Find out more about the Stanford Neuromuscular Biobank and National Disease Research Interchange.


Ayurveda: Moderation is the Key

Shaaranya Geetanjali Chakraborty’s health journey includes many stops along the way before finding Ayurveda. Not only did the ancient tradition of medicine cure her of chronic constipation and eczema but it changed the course of her career. Shaaranya is a graduate of Vedika Global founded by Acharya Shunya, scholar of the Vedic Sciences of Ayurveda, Yoga, and Vedanta. You can learn more about Shaaranya’s work here.

For more information about Ayurveda, check out Acharya’s book, Ayurveda Lifestyle Wisdom: A Complete Prescription to Optimize Your Health, Prevent Disease, and Live with Vitality and Joy.

 


Stories of Healing with Essential Oils

This episode features personal stories about how the use of essential oils has helped with a variety of conditions including depression, anxiety, fibromyalgia, fatigue, post-surgical pain and post cancer treatment.

If you’re interested in deepening your exploration of essential oils, please leave me a note here.

For information about Dr. Kris Gast’s medical practice you can visit her radiation oncology website or Beauty through Health website.

To learn more about Lori Melero’s alternative care practice, visit her website.