Telling a patient story can be a highly emotional task for anyone. Thankfully, there are people who can help. Emily Newberry – author, speaker, coach – at the Kaiser Permanente in Oregon, is one of…
Do you see images of yourself reflected in popular media? As a person with a chronic health condition and/or disability, is your life reflected in movies, television, print, or social media? In this themed podcast…
Are you ready for three days of workshops, adaptive activities, and discovering resources and services to enhance your quality of life? Peruse the agenda, make plans for November 20-22, and register for the free Virtual…
This is part 2 of a conversation with Dalia Kinsey, RD, LD, SNS. We talk about becoming our authentic selves, how trauma impacts our physical and emotional health, and the need for inclusivity and intersectionality…
What is a Patient Advocate? A patient advocate can be an actual patient with a mental and/or physical health condition, a caregiver for someone with a health condition, or a paid professional advocating on behalf…
February 28 is International Rare Disease Day. There are over 6,000 rare diseases or disorders with 80% having genetic origins. Global events are planned to draw attention to the need for medical research. This brief,…
Maybe you have a firm grasp on what Patient Advocacy is all about? This episode explores different ways people with disabilities, their allies, and their caregivers practice advocacy. Whether you’re searching for the best healthcare options,…
To kick off Disability Awareness Month, our guest is Nina G – the first female stuttering comedian and dyslexic writer. You’ll get a taste of her stand up material as well as learn about her…
It’s all about support groups! Listen to several support group facilitators talk about their experiences attending and eventually facilitating a support group. Patient advocacy organizations represented include the Muscular Dystrophy Association, Multiple Sclerosis Foundation, and…
Sandor Katz has been living with AIDS for over 20 years. In this episode he talks about his early activism, getting back to nature, and his passion for fermented foods. You can learn more about the…
