Apparently last year, and the year before, I didn’t blog or do a podcast episode relevant to Thanksgiving. I want to make up for that…because…I am grateful for a lot! I often express gratitude in…
Maybe you were part of last year’s inaugural May Movement Challenge? Here’s a video showing the highlights from a month-long array of free, accessible online movement classes. This year we have several of the same…
“Don’t worry, be happy! It could be worse. It is what it is.” by Toxic Positivity
- December 28, 2021
- Tagged as: caregiving, compassion, coping, support groups, tosic positivity
I remember years ago when I had a Toyota there was a dealership I’d go to regularly for oil changes and other car repair. You know how you drive into a big open space, like…
Rock Climbing & Acquired Disability Peer Support Group
- September 26, 2021
- Tagged as: acquired disability, disability, movement, paraclimbing, stroke, support groups
Christina Leffmann, or Roma as she prefers to be called, is passionate about indoor and outdoor rock climbing as well as the Acquired Disability Peer Support Group she started. In June Roma traveled to Salt…
Loneliness: How lonely am I and What can I do about it?
- December 1, 2020
- Tagged as: chronic illness, disability, loneliness, social support
Loneliness is a public health issue. It was before the COVID-19 epidemic forced us into social isolation. Former U.S. Surgeon General Vivek Murthy called loneliness a “growing health epidemic,” and even wrote a book about…
- Autoimmune Disorders
- Coping
- Laughter
- Mental Health
- Neurological Conditions
- Podcast Episodes
- Social Support
Let’s Rant: Unhelpful Advice
It’s April Fool’s Day so we’re mixing things up with an unhelpful advice rant. One can’t be positive 100% of the time. Now is the opportunity to share about all of the weird things people…
How is the threat of Covid-19 (coronavirus) impacting your life? Beyond fierce hand washing, are you changing how you relate to others? Is social distancing keeping you indoors? Are you second-guessing where you go, what…
Patient Advocates, Patient Leaders
- February 4, 2020
- Tagged as: advocacy, autoimmune condition, caregivers, chronic fatigue syndrome, chronic illness, chronic pain, collagen six intermediate congenital muscular dystrophy, fatigue, fibromyalgia, Limb Girdle, lupus, Lyme disease, muscular dystrophy, neuromuscular disease, patient advocate, patient leader, respiratory, respiratory health, ventilator
What is a Patient Advocate? A patient advocate can be an actual patient with a mental and/or physical health condition, a caregiver for someone with a health condition, or a paid professional advocating on behalf…
- Aging
- Alternative Healing Modalities
- General Health Issues
- Mental Health
- Neurological Conditions
- Podcast Episodes
- Social Support
An R.N. Talks about Herbal Relief for Muscle Pain, Anxiety, Insomnia & GI Problems (at a support group meeting)
Registered Nurse and proud septuagenarian, Barbara Blaser, was the guest speaker at my Northern California myotonic dystrophy support group. With her healthcare background and deep knowledge of medicinal herbs, she spoke about the use of…
Two friends from grade school share their stories of a diagnosis of a neurological condition. Marc has Multiple Sclerosis and Steve has Parkinson’s disease. I have a form of muscular dystrophy called myotonic dystrophy. It’s…
