Sometimes I see Facebook posts from high school classmates reminiscing about the “good old days.” I did have some unbridled fun back then but I far prefer my adulthood. Even with a chronic health condition. Back in high school and college my emotions ran the intensity gamut from I’m on top of the world to If I only had a gun, I’d end it now! And that could be within the same hour. It was exhausting.

I knew nothing about regulating my emotions. I felt…deeply….and often. Anger was no stranger to me. Anger easily led to sadness which could take hold of me for awhile. I was depressed intermittently throughout both high school and college. I tried anti-depressants and anti-anxiety medications to help regulate my moods. It offered some relief but the side effects were annoying.

Eventually I developed tools to help manage my emotions. I don’t mean I got rid of them, I just felt them a little less intensely and I was able to achieve a sense of balance more easily.

So how does one begin to regulate their emotions?

I think the first step

is an awareness…developing a mindful attitude about an emotion. Realize what that emotion is and how your behavior has changed. You are not that anger, sadness, or ecstasy. Or at least that’s not all of you. Try to step back and see it. Examine what has led you to that feeling. Realize that this feeling is temporary and that you will experience this and other emotions again.

As I developed a more refined self-care regimen with my diet and exercise, I realized that not only was my physical health impacted, but so was my emotional health. What we feed our bodies also affects our emotional selves. I’ll explore these connections in our Facebook group during the month of September.

To help you get a perspective on your emotions, use the Health Storylines app to monitor your daily moods, food intake, and physical activity. Be diligent for a couple of weeks and then download a report to see if you detect any patterns. Remember to track any medications you take as well.

I am definitely not an expert on this topic but over the years, and a steady practice of yoga and mindfulness, I have become more resourceful in regulating my emotions. I look forward to hearing about your experiences.

If you’ve joined me on this Self-Care Challenge since the first month, thank you! I hope you’re progressing well, learning a lot, and achieving a few goals you may have set for yourself. If you’re new to the Challenge, feel free to join us now. Briefly, here’s what you’ve missed.

The first month we spent identifying symptoms and/or health challenges we’d like to work on. I introduced you to six categories of Self-Care practices. We became familiar with the Health Storylines app. During Month 2 we focused on Diet & Nutrition. In the Glass Half Full Group on Facebook we shared information related to Diet & Nutrition. You’re welcome to join this group at any time to deepen your exploration of self-care practices.

The challenge this month is all about moving your body, and it’s not just called Exercise. That’s a scary word for some people. Even scarier for me is the term…physical education. That brings back miserable memories for me throughout elementary, middle, and high school. The competition, humiliation, and mandatory one piece gym suits never fostered a love of exercise. But I did enjoy other activities involving movement. I loved dancing in high school and college and never thought about it as exercise.

Recently I purchased a Fitbit Charge 2 device which I wear daily. The data feeds into the Health Storylines app. The wrist device tracks my steps which motivates me to walk more. There are days when I don’t officially exercise but do house and garden chores and I can hit 10,000 steps. That’s movement and it certainly counts.

But my feet and legs don’t work as well as they used to. I have drop foot and often am too fatigued to walk. That’s when classes such as gentle yoga and chair fitness classes are a big help. I’ve attended a variety of chair yoga classes and tomorrow I’m going to a Seated Tai Chi class. Adaptive exercise classes are wonderful. 

But maybe you don’t have these adaptive exercise course offerings where you live? Or perhaps you just don’t want to leave your home? That’s when the DVD player becomes your coach. I am a big fan of gentle exercise DVDs especially when it’s hot outside and I don’t feel like driving to the gym. Here are some of my favorites: Yoga for the Rest of Us, Chair Dancing through the Decades, Simple Qigong, Sitting Fit Anytime, and Tai Cheng.

Join us in the Facebook group for a month-long focus on moving our bodies. I’ll share some evidence-based research studies as well as ideas for boosting your daily physical activity.

YouTube is a great place to find motivating movement video segments; here are a couple from the Glass Half Full archives:

In the continuing series, Food=Medicine, Cooking with Love explores different interpretations of how love can be a vital element in the food we eat. Whether it’s part of the mission of a local organic farm, a vegetarian chef preparing pureed, nutrient-dense food for her father with progressive Parkinson’s disease, or another chef infusing fine dining, multi-coursed meals with cannabis — each guest offers a fresh perspective for mindful eating.

Lacey Sher, owner/Chef of the Encuentro pop-up restaurant in Oakland, CA shares two recipes for nutrient-dense smoothies. Aleta Pierce, farm manager for Alameda Point Collaborative’s farm2market program, welcomes farm volunteers and CSA subscribers. Michael Magallanes, San Francisco-based chef, prepares meals for private clients.

Sweet and Green Protein Smoothie

hemp milk, coconut water, or spring water

handful organic fresh or frozen blueberries

handful organic fresh or frozen raspberries

4-5 leaves of lacinato kale or romaine

handful of parsley

2 scoops hemp protein

3 pitted dates

1/2 avocado

– add ingredients into your Vitamix or blender
– blend together until super smooth
– pour into your favorite to go jar or mug
– sip slow and enjoy!

Berry Banana Antioxidant Booster   

This smoothie is full of colorful foods, such as berries and cacao, which are loaded with a wealth of vitamins and antioxidants to help the body stay strong and vital. Plus with B-vitamin dense maca, omega rich hemp seeds, and beauty boosting coconut oil, this smoothie is filling yet completely whole and natural, assuring optimal function of body and mind. Enjoy!

3 cups of water or herbal tea

1 cup frozen organic blueberries

1 cup frozen organic strawberries or raspberries

1 frozen or fresh organic banana

handful of cacao nibs

2 tablespoons raw coconut oil

1/3 cup hemp seeds

2 tablespoons maca

1/2 stick vanilla bean or ½ teaspoon vanilla extract

optional: 2 tablespoons spirulina, your favorite green powder, or vanilla

Sweetener of choice: 3 tablespoons honey or agave, 2-3 pitted dates, or 3 drops stevia (Stevia is very sweet and strong. Use the least amount to taste.)
– add ingredients into your Vitamix or blender
– blend together until super smooth
– pour into your favorite to go jar or mug
– sip slow and enjoy!

These are simple and delicious and folks can use less fruit for less sweetness. I also like to add different ingredients such as chia, moringa powder, sometimes different vegetables like cooked or raw sweet potatoes, substitute spinach for kale if I have it. So many options. ~ Lacey Sher

Resources for Dysphagia (Swallowing difficulties)

If you truly want to understand the mechanics of dysphagia, check out this recorded webinar with the author of the textbook, Dysphagia: Clinical Management in Adults and Children, Michael E. Groher, Ph.D. It’s about an hour in duration but you’ll have a much better understanding of what this condition is.

Here is a community-generated recipe guide for people with swallowing difficulties. Recipes were submitted by caregiving family members.

Here is a recorded panel discussion about food preparation for people with dysphagia. Additional resources can be found here.

More Food=Medicine Podcast Episodes

The first Food=Medicine podcast episode included Retired Navy Lieutenant Laura Root and Edibell Stone, LPC & health coach talking about their respective diets. The second Food=Medicine podcast episode featured Jill Nussinow, The Veggie Queen, at the Farm to Fermentation Festival. Jill is a Registered Dietician and author of cookbooks and DVDs. If you want to go deeper into an understanding of fermented foods and their healing properties, check out this episode with fermentation guru, Sandor Katz. This episode explores the ancient tradition of Ayurveda through one woman’s health and diet journey.

Hot weather affects the health of humans and animals

Basset Hound with ears flapping in front of a fan

High temperatures can exacerbate symptoms for someone with a chronic health condition. The best way to cope may be to seek refuge in an air-conditioned environment. If that proves to be difficult, you may learn about a few tools and resources from patient advocates, You’ll meet Kate Mitchell, from Boston, who has Rheumatoid Arthritis and POTS (Postural orthostatic tachycardia syndrome), Danny van Leeuwen, also in Boston, who has Multiple Sclerosis, and Brook McCall, in Portland, Oregon, who has a spinal cord injury. They share their experiences with weather — hot, cold, ice, snow, and pressure changes.

7 Hot Tips to Beat the Heat

1. Pre-cooling

Check out the National Multiple Sclerosis Society website for information about pre-cooling techniques.

2. Hydration

Water’s great but so are some other beverages. The Ayurvedic tradition focuses on herbs, spices, and other plant-based remedies to cool you down. Check this magazine article for a few recipes. If you’re intrigued by Ayurveda, have you listened to last year’s podcast episode?

3. Diet Modification

Consider eating smaller, lighter meals. Here’s a list of hydrating foods.

4. Clothing

Check out this issue of the UC-Berkeley Wellness Newsletter for tips on appropriate clothing for hot weather.

5. AC over Fans

This is discussed in the link above.

6. Yoga Poses

Curl your tongue and breathe. To learn more about this cooling yoga pranayama and other cooling asanas, visit this webpage.

7. Meditation

Listen to this guided meditation to help you cool down…once you’re safe inside or in a shaded area.

Additional resources: From Brain & Health magazine.

Last month I embarked on a Self-Care Challenge and invited you to join me. You can join at any time by reading the posts, contributing feedback in our Glass Half Full Facebook group, and using the Health Storylines online tool.

I’ve been practicing Self Care for years without even realizing it. Years ago, before I was diagnosed with a neuromuscular disease, I began to experiment with my diet. I didn’t necessarily have a bad diet but I often felt bloated, experienced abdominal cramps, and probably had what we now know to be irritable bowel syndrome.

I can’t recall what the impetus was but it happened over 30 years ago. I gave up eating beef. Within a year or two I was no longer eating any animal flesh and called myself a lacto-ovo vegetarian (plant-based diet with dairy/eggs). My bloating disappeared. My cramps were intermittent but I still had that occasional nervous stomach.

A diet is really a dynamic concept. It shouldn’t be fixed, i.e. eating the same foods every day. The seasons change and there are different foods to be consumed aligned with the season. Our bodies change. We continue to learn more about food, how food is prepared, nutrients and micronutrients. As I’ve learned more about food and nutrition over the years, I continue to tweak my diet.

Little changes can have a huge impact. When I started going for acupuncture treatments, 15 or so years ago, I was asked about my diet by the practitioner. No Western-trained physician had ever spent much time talking with me about my diet. Even when I complained of GI problems. I won’t even attempt to claim any real knowledge of Traditional Chinese Medicine (TCM) but there is a long history of food = medicine. The first change I made during my course of TCM treatments was giving up that big glass of orange juice I started each day with. That cold sugar hit was not welcomed by my belly.

I’ve learned so much about food over the years and if I shared it, this would become the longest blog post in history. But, that’s not what I want to do. My diet & nutrition journey is likely different from yours. Becoming a vegetarian has helped me, yet it’s not the only way to eat a well-balanced diet. There are plenty of vegetarians that eat poorly and plenty of omnivores that eat well.

In the next month I will post in the Facebook group…mostly factoids from various nutrition newsletters I read. Here’s the Self-Care Challenge for YOU:

  • Become aware of what you’re eating, how much of it, and how often. The best way to do this is with a Food Diary. Using the online Health Storylines tool, you can keep track of your daily intake using the Food Diary feature.
  • Knowing what you already know about good foods and beverages & bad foods and beverages, each week select one bad food to omit for a week. And try to eat a new food — something plant-based. I’ll help you with suggestions.

Remember, small steps in making health behavior changes are the key. Good luck!

Sound Bath? Sound Meditation? Sound Symphony?

Sound therapy has become a wonderful tool to access deep relaxation. For many, it is a gateway to meditation. Melissa Felsenstein of Inner Sounds Meditation shares her story of how playing crystal bowls and metal gongs helped her heal from symptoms of anxiety and depression. A self-proclaimed Nervous System Advocate, after several years of exploring these musical instruments, she now shares her process to help others.

Check out a video from this Summer Solstice Sound Bath.

Transcript

welcome to glass half full with leslie krongold she shares her stories experiences and knowledge of living and coping with a chronic health condition learn about tools and resources and hear inspirational interviews that help you to live a life filled with quality and dignity with two decades of support group leadership leslie’s ready to help you make lemonade out of life’s lemons are you ready are you ready welcome to the summer if you listen to the last podcast episode about nature i hope you’re now trying to get a daily dose of it vitamin n that is this past week i was quite fortunate to get this great double dose of vitamin and at the university of california’s botanical gardens in berkeley on wednesday i attended my first forest bathing led by a certified forest guide but the two and a half hour experience ended in a redwood tree grove and on thursday morning i found myself in the same grove i didn’t sleep there overnight and i was not kidnapped and taken there but i returned for a solstice sound math i would assume most of you listening out there have never been to a sound bath but it’s an experience i bet will come your way soon my first sound bath we always remember our first time right was nearly three years ago in july at a yoga studio in oakland california sound practitioner was melissa felsenstein and she is my guest for today’s episode so perhaps you’re wondering just what is a sound bath is it always experienced in nature and how is leslie able to read my mind

often i use wikipedia as my go to web page for a solid definition of something but there is no entry for sound math i’ll have to rely on my experiential knowledge so you know when you’re in a bathtub you’re enveloped in water for me this is a truly relaxing experience well in a sound bath you allow yourself to be enveloped by the sound not any sound like i don’t think any cdc concert would qualify but you know who knows melissa uses crystal balls gongs and chimes to create her sound math i’ve been to several sound experiences with different practitioners sometimes it’s called a sound meditation or sound symphony where other instruments in addition to bowls and gongs are used such as a harp wooden xylophone and even a human voice each sound experience is unique many factors contribute to the overall experience who is the practitioner what is the environment like if it’s indoors what are the acoustics like how close to the practitioner am i seated or am i reclined do i shut my eyes and let myself be carried away or do i remain seated so i can watch and listen on thursday i chose to have my eyes open it was a gorgeous sauce this morning in a redwood tree grove and i wanted to videotape portions of melissa’s performance best to keep my eyes and ears open for that what you’re listening to in the background is from that day in the redwood grove you can hear birds communicating in the background and actually when melissa stopped playing the bulls and gongs the birds really went crazy i think they were beckoning for an encore you can already tell i’m partial to melissa’s sound performances i’m a fan shall i say her journey to this work and you know and now after three years she’s making a living as a sound practitioner or healer anyhow her journey is what this episode is all about you can watch a video of the solstice sound bath on the glass half full youtube channel but it’s a best experience live a link to the inner sounds meditation website is in the podcast notes and that’s melissa’s website so i was introduced to sound as therapy in 2008 and i was traveling india and i was at one of those bazaars there was this big market i walked into one that i had i’d known about the tibetan bowls the metal ones they’re metal bowls that are handmade in tibet and in india this was in rajasthan so it’s the northern part of india and so i i went there i saw i saw this this shelves and shelves of metal bowls and i thought oh that’ll be a really fun thing to have and i started talking with the man the store owner and i kept kind of coming back to it like we were there for a couple of days and i kept just wanting to be around this man and just sort of talking with him and i helped him with his business card and some other things and we were just kind of becoming friends and eventually he told me that he used these bowls he used the sounds to help heal children specifically of different ailments and that’s what he was known for and i remember i had this moment like oh my gosh like i’ve always been interested in music i was a dancer so the idea of sound as a way to help people i was just so blown away and i thought and then he was showing me some techniques and i eventually bought a bowl from him and then i convinced him to give me his mallet you know he didn’t want to give me like his mallet but i really wanted his mouth i felt like he was infused with this like power you know and he was very reluctant but somehow i convinced him um and i uh yeah so i came home and i was so inspired from that trip and i thought i’m gonna become a sound healer and then i got home away from india back in the grind of los angeles and i was like that is a crazy idea like who who would ever want that you know i completely denied the dream like i felt the dream and then i i denied it and i was working a corporate job and i just continued and then it’s interesting how you know you have this little if it’s meant to happen it will happen right so i i said i said no and then of course you know a short time later it came back to me like a boomerang i think i just felt like it was just too wild you know and anyway so needless to say um a few years later uh my father fell mentally ill so he was dealing with bipolarism and he was on lithium but then the lithium was really hurting his kidneys and so he was abruptly taken off the lithium by a really bad doctor i don’t know you know someone is a certain way and then you have no idea what might happen really when they’re taken off their meds you just assume it’ll be fine kind of you’re like well what’s gonna change really well everything changed for him everything changed he became manic and he just never recovered he was manic for eight years until he died so uh in the beginning you know he was on the street and it’s interesting how the system i i’ve said this before but the system doesn’t really care that that person was an mit graduate on a scholarship i mean my father was brilliant he worked for hewlett-packard his entire career starting right when he graduated from mit just this really brilliant man very kind and soft-hearted and always taking in stray animals and just a very introverted introverted quiet genius and but the system doesn’t care it doesn’t care that what you were you’re just like another person you’re another number and so he was lost in the system of just mental hospitals and um all sorts of situations that i i don’t really want to go into too much too much detail because it’s um it’s painful but we’ll just say that it was it was a really bad time and so i was very close to my dad i’d say we both had this kind of wild adventurous self that we both understood and we were both a little bit weird and we liked like kind of things that were a little different from other people and he really encouraged me to be an art major he loved the arts he loved that i loved music he loved that i danced so it was really supportive and just i don’t know fun we were like pen pals during that you know my college years so anyway when he got sick um i was doing yoga i was doing kind of your typical exercise and but my nervous system was becoming so

it was becoming so severely imbalanced because i was so afraid all the time for my dad i was afraid for his health i was afraid for my mom’s safety i was afraid for everyone else’s safety he became kind of a dangerous man he became an angry man so um and his his own safety for himself and uh it just became too much you know there’s a certain amount of stress you can deal with but then when that stress keeps going like whether it’s a chronic illness right you understand that and just dealing with this something that’s relentless it doesn’t it doesn’t ever let you go and you don’t know what’s down the line you don’t know what’s down the line you have to become it’s very uneasy it’s unsettling you can’t ever get kind of grounded and feel confident or sure and i think about that like chronic illness or or cancer treatment and sort of my experience too there’s a lot of commonalities and i think a lot similarly this happens for everyone’s nervous system that’s under chronic intense stress you know basically like everyone else i stopped sleeping i was insomniac um because i just couldn’t rest my mind at night so that and then i stopped sleeping then i wasn’t able to eat and digest you know i could barely eat anything i was losing weight i felt sick all the time and bloated and it just felt awful i had migraines i had tmj i had teeth grinding and eventually it got to the point where i had like a shake as well like like and i was losing my hair i mean it was wow severe anxiety severe severe anxiety and as that started to compound i was also greeted with depression because you start to really feel down when you can’t get yourself healthy and you’re seeing you know i think depression it’s different from sadness i mean i was sad about my dad but depression is this there’s a quality to it that’s um so gray it’s so bleak and i could feel that with just this idea that tomorrow is going to look exactly like today right and when you look into the future and that’s all you see is a broken body and sadness grief you know at the time i didn’t realize i was grieving the loss of my dad right like i had lost my dad he was here but who he was was someone like completely foreign to me occasionally over those seven years i’d see this little spark and i’d remember who he was and he’d do a little joke or something and it gets me like teared up just thinking about god it was such a hard time um but was there also an element of fear that this could be your future oh yeah that’s a really good point yeah like i looked into my own future and i was like oh wow this could be it because i was still going to yoga classes and i remember being so like angry and i was very bitter a lot of the time because i was so um mad that my life was lost and my dad’s life and my family my family you know we were sort of broken up by the situation as any family would it’s very very hard to deal with mental illness i asked melissa about her reintroduction to the sound work how did she recapture that dream she originally had in india so i would go to these yoga classes and yoga had always been my savior it always been my refuge and i would sit in shavasana i would just steam i was just so mad because like i kind of felt like even that was taken from me like no matter what style of yoga i did it didn’t work i was doing acupuncture which i always felt exhausted by like i felt like it took something from me to show up to get there to receive treatment and then afterward i was always super tired reiki same thing i tried talk therapy i tried some western medicine i was basically just doing anything i could and i just i just didn’t have any extra energy for anything i was barely able to kind of just show up in my life and just kind of just get through the hours of every day so a few different people um encouraged me to take some time off and i and i did and one person actually said she was like you know i really she was my my therapist and she said i think you should like go to an ashram so i did i did and it was a brilliant move because they’re so disciplined there’s a lot of chanting and that’s kind of when i opened up to this other side of yoga that wasn’t just asana you know asana is the movement it was the chanting and then the meditation um and you know just kind of broadening out what what this concept of of yoga was and at the same time i was taking some classes around my neighborhood and i walked into this class and little did i know at the very end in shavasana she plays a crystal ball and i just had this moment where i could feel my whole body responding to the sound you know that deep deep relaxation and i could feel even my nervous system kind of calming down and it was really brief you know it was only like a minute or two and i just thought i don’t care why or how i’m just going to i walked up i was like what is this i didn’t even know what it was she’s like this is a crystal ball and i was like what and then i just bought them and i had them delivered and i taught myself how to play i bought i bought three of them from home shop in florida no they don’t make them there no no almost all the bowls are made in china actually but um so uh and they were delivered in like you know eight business days and i just unpacked them and just started to play them because i just at that point i was like i don’t care what it is i don’t care what tool it is because i i think i think the pivotal moment too wasn’t just how i felt when i heard the ball and i think it also was that it created hope for me a hope like that future that i saw before that we were talking about where every day is the same and you almost just want to give up you know it’s like why keep living why do i want to live i don’t want to live like this you know and i think a lot of people are confronted with that um often in our lives uh but so it brought me this tiny bit of hope like maybe it could be different maybe i could just try and use this so the sound came back to me under much more rough circumstances um and you know unlike some sound healers uh sound is taking off right now and there’s a lot of different healers out there but i think the thing that makes it slightly different for me was like it was necessary this wasn’t a choice it wasn’t like i like gongs these sound so pretty they’re fun they are fun they’re outrageously fun to play to feel it in your body as you play it’s amazing and i could see that draw but for me it was necessary like i had to do this every day if i wanted to become well again

i don’t know i just feel like the gongs what what they did for me i felt like you know i started for like a month or two with just the bulls and they really rewired my nervous system but i was missing the jump for my depression like i still couldn’t quite mitigate that and um i think the gongs really help with that because they take you into this ethereal meditative open space so when i got the gong it’s jupiter jupiter was the gong each of each of the gongs have a um they’re a certain note that’s aligned with the orbital properties of each planet and they have they have the base note and then they have two overtone notes as well that’s how they’re different from orchestral gongs which are not tuned at all so when i have eight gongs or something i can set them up to be very harmonious based on notes or feelings or dissonant you know but orchestral gongs you can’t do that they’re all just set they they’re tuned to sound pleasant but that’s about it so these are really special instruments and they’re so high quality they’re all made of an alloy of of metal oh okay so they vary in what they’re made of well depending on the maker yeah every maker has their secret recipe so piste’s got a recipe and meinel has a recipe and um nobody wants to give up their secret recipe because it’s a combination of different metals okay to make the sound and of course you know there’s also there’s gong gongs have been around for thousands of years um so there’s chinese gongs and tai gongs and burmese gongs and how did you know you wanted to go to gongs like yeah that’s that’s a good question i don’t know there was an intuition that just you know i did go to a few sound meditations at the time in l.a and i would go and i would feel this like distinct calling like if if i really really want to feel healthy i’m going to need this and i i think it was so it was intuitive but once i got it i did notice a big difference in my healing experience

it’s very hard to describe this the state of being

i always struggle with it on paper and through voice because it’s like a place that’s beyond time i don’t know it’s a place beyond words it’s a it’s a feeling it takes you into this almost like to the soundless place that’s where the gongs take you it’s like you’re you’ve got to prepare the the mind you got to create the pathway in into the silence and i think the gongs really help with that and when we can find silence in different ways rather than just through meditation which is so hard for most people including me i mean i became a meditator after i used sound as meditation as a meditative tool but um so we all struggle with sitting there you know and in yoga they they have you do pranayama first so that way you can do a little breathing technique and then hopefully get your mind ready well in the same way that’s what the sound is doing the sound is stimulating your mind it’s stimulating your senses it’s stimulating your cells it’s vibrating everything it’s unpredictable the gong i don’t even know how it’s gonna show up you know some days i do a hit that i’ve done a million times and it just looks like crazy um so it’s very unpredictable and so the mind can’t um the mind relaxes in that actually it doesn’t it doesn’t grasp it’s not able to grasp to rhythm you know it sort of has to deal with unpredictability which is good because it makes it more flexible but the the sounds i think or this is what i know the sounds of the gongs

are trying to prepare your mind for the sounds without the gongs to prepare it to kind of clear those everyday thoughts out of the way with sound because it takes over just it’s not going to let you spend a lot of time thinking about your grocery list

melissa explains how her playing of the gongs was a healing process remember she was doing this on her own still the gongs and the crystal balls were tools for her own healing also getting a lot of strength from that space too right resiliency you kind of feel like you can get through these difficult points of our lives and you know my dad’s story you know as as i got better and better and better you know dad got worse so you know right as i was launching my business my dad was dying you know so um and i’m smiling right now which no one can see uh and it’s because you know he brought me the biggest gift like would i have found this if everything had stayed the same probably not or maybe it would come to me in a different way we don’t know um if you’re meant to do it apparently it comes back again again yeah but uh yeah i mean his he’s he’s he’s an inspiration for it and also i really felt like the sound as therapy and for myself really expanded my capacity to just handle more you know and so even though dad was going through so much i felt very robust and i let go of the need for him to be the way he used to be and i accepted who he was and i accepted his own karma if you believe in that his own path like i can’t change that it’s what his soul needs and i can just support him with love and kindness and caring and it really having those kind of realizations helped immensely with the guilt and the pain

and i’d say i really started to feel better about a month into it and then really powerful changes in the nervous system three months later and i’d say the depression was really reigned in and sort of obliterated probably six months into it wow so yeah within a year i was already doing really i was a really different person and over the years people were like wow you’re so less gritty like you’re so much more soft i used to be really kind of intense and kind of feisty so it’s it’s it’s changed my pulse you know it’s changed my own vibration and and um but it was you know i started out with myself and i remember my friends they were like what have you been doing you seem different and i was like well i was kind of embarrassed about it i was like well i kind of do this stuff with sound and they’re like what i’m like they’re like that sounds cool like they’re all into it you know and i was like i don’t know and they’re like we should you should you should play for us and i was like i don’t know about that it really like i was pretty reluctant to share um for many reasons you know i kind of felt like well what kind of person is a sound a sound practitioner i’m even afraid to say healer it just feels too heavy what kind of person is that like who does that you know and i’m like that’s not me i like to eat hot dogs and hamburgers bacon i love bacon god if i could have that every day i would and i love to like drink wine and i i’m very standard in many ways just like i’m just a normal chick like you know who is this and so i was very um embarrassed and even when i first moved here you know that was a three years ago i launched my business full-time after doing a few of those events you know and then kind of growing a little bit in la but but i knew i just knew i needed to come here i need to come back home this is where i’m i’m bored i was born in south bay and now that melissa’s been sharing her healing tools with others for over three years she’s learned a lot about the instruments and how people respond to her performances i asked her to elaborate on this it’s organic and you’re really like for me i’m just listening i’m listening so intensely to wait and sort of find the sound that’s special because every sound meditation has several of them and it’s a it could be a rhythm it could be especially with the gongs the bowls are interesting how they show up every time too a little different but the gongs they definitely have their own

individual way to them for each one and so i’m just searching i’m looking around and just trying to find okay where’s that nice and i hear it and i’m like oh what’s that what’s happening here and i’m like oh that’s exciting you know even after years and years and years and years of playing i have those moments every time or where one gong who normally plays very dark and deep is showing up right what’s this about what happened and i’m sure you could go into all sorts of like um the physicists are always like well it’s the temperature of the room and this and that but really i i think there’s something more to this that’s um less scientific and less rational because i could have the same exact two gongs playing for a private session and the person changes but nothing else does and they show up differently and i think that’s also me as a practitioner because like i said i i’m intimate with these instruments they were a big part of who i am and who i’ve become and i have a great respect for them so i’m really i could there’s many people who just want to you know aggressively go at the gong because it’s so exciting it’s so stimulating and it’s fun as a player it’s fun but as a recipient it can be create a lot of intensity and i’ve heard so many people go to these other experiences and say i hated it you know i will never do it again i found that to be like i was panicked the whole time and it’s because your nervous system you know doesn’t understand these sounds and they sound scary and they it just goes into fight or flight so as a player i’m very aware of that and because i’m a nervous system advocate and i’m trying to re-teach people how to relax i’m trying to calm their nervous system down and to clear their minds that’s my intent it’s like a healing environment i am mitigating the gongs quite a bit you know what i mean i i’m really working with them from that standpoint it’s almost like they know that that’s what they need to do and i know that’s what i need to do so but they will play very very very differently and we’re talking like nothing else in the environment has changed so you have to wonder well what is that about well it depends it depends how scientific you want to be or if you want to be open to you know the potential that there’s some greater forces happening that affect how they show up but it’s this idea that this is what i mean by there could be something more and i think there is i’m saying could because i’m being a coward well do you think the energy of the people yeah okay i think so the energy of the people that i understand right you do but you know the average person i don’t know um but yeah the energy of the people um and i get a lot of intuitive because i’m going into a very meditate meditative state i get a lot of intuitive hits as well about people so about like a stranger i don’t even know them but as i’m playing you know there’s a rhythm and there’s a feeling and i’m like oh

i had a few questions from melissa that were less about her journey and more about the science behind the use of sound as a therapeutic tool i asked her to talk about brain entrainment a term i wasn’t familiar with but is often mentioned in this line of work so entrainment is the ability for our brains as animals as humans um and animals to synchronize and so this is how large fish can swim together as one organism or if you’ve ever seen a huge group of birds and they’re might and they’re they’re turning like a mass and it’s not because they’re talking to each other like let’s make a left no it’s because they’re entrained they’re near each other and they’re synchronized two heart cells placed near each other but not touching synchronize pendulums synchronize together um in a conversation actually there’s entrainment with body language so if i were to sit here and put my my chin on my hand you might eventually do that if i rub my nose you’re gonna rub your nose actually that happens every time because people are worried about like is this the whole mirror neurons yeah it’s mirror neurons yeah and yeah entrainment so um in this case your brain waves are synchronizing with the sound waves and the sound waves have tons of properties that induce deeper states of slower slower brainwave states or deeper states of relaxation some of it’s the tonal qualities they have high tones and low tones going together they have very low frequency tones as well that can help they aren’t pure notes so they’re normally flat or sharp by a random amount as your your brain receives these tones it entrains and naturally starts to slow down and it’s through that process that you can go into these deeper states so you can drop into the beta state you know relax tape and the theta lots of people drop into delta as you know so delta brainwave state is deep deep sleep so it’s the kind of sleep that you get after like massive travel right and you’re so tired and you’re like oh my god i’m exhausted boom and then 12 hours later you wake up so it’s like that but imagine getting that in just a one hour experience and say you get 45 minutes of it and it’s rich sleep

my belief you know there’s been a lot of connection around sound healing and cancer treatment my feeling is you know with some of these conditions fibromyalgia chronic pain conditions where our sleep is affected i really it’s extremely nourishing because it’s that rich rich sleep and they find that people are falling asleep and sleeping eight hours but we wake up and we’re tired and there’s disputes about that right maybe it’s you’re waking up at the wrong time of your cycle of your sleep cycle but there has been some research um of late that says that actually it’s you’re not getting delta because we go to sleep and we’re thinking about all these things and we’re stimulated by the ipad and whatever else that we’re using which i’m guilty of and many others right we’re we’re on the line or we’re reading a book or something and we’re too stimulated and we sort of fall asleep thinking about our to-do list and then we wake up thinking about our to-do list and we’re not rested because we’re not actually getting that sleep but you can train your brain and that’s what the sound does so it’s cumulative so each time people they come to the sound meditations and their brain through neuroplasticity which is so amazing right we used to think that your brain was done growing at like 17. and now we know oh my god brains are changing all the time all the time and so you can get better sleep i mean i’m proof of it right like you can restore your entire nervous system from you know it was [ __ ] before to like robust and healthy and healthy immune system and everything just with sound that’s what i did but it’s not some kind of snake oil it’s through science you know if you can get into these delta brainwave states and your brain also starts to learn about the theta brainwave state which is so hard to describe that was the space i was talking about you know inner space a place that is boundless it’s free every time i walk in i it just gets bigger you know there’s so much space in there and there’s so much beauty and it’s a feeling um but your brain starts to get used to it it starts to unlock and become more comfortable with these states that we’re becoming less and less aware of and our ability to get into them on our own is becoming harder and harder simply because we’re being pulled in so many directions right like technology has been great but now we’re always kind of multitasking and the brain necessarily wasn’t made for that or the nervous system the nervous system hasn’t really improved in the way that technology has right it’s an old system so your nervous system doesn’t realize like oh actually i’m not being chased by a bear i’m just late to a meeting like it could be worse right it can’t differentiate but and the body responds in the same way either way and that’s where we get destructive with stress that’s when stress becomes destructive but there’s ways that are easy have no side effects you know sound has no side effects it has only benefit and you know when i said in the very beginning i was doing these other modalities and i felt like they took away from me and i had a private client say the same thing and he so beautifully said he’s like when i come to sound it always feels like it gives to me it doesn’t take it just gives and i love that about it as a therapeutic tool i hope you enjoyed this episode perhaps you might consider exploring this healing modality by attending a sound bath in your area or even trying to see how you react with different sound tools watch the youtube video segments on glass apple’s channel to learn more and check out melissa’s website thanks for listening thank you for listening to glass half full leslie invites you to leave a rating and review on itunes this helps spread the word to others dealing with chronic health issues for show notes updates and more visit the website glass half full dot online last half full dot online

What is Nature and how is it beneficial to our emotional, physical, and spiritual well-being? Bonnie Lewkowicz (Program Manager, Access Northern California) and Lori Gray (Adventures & Outings Program Coordinator) both work for the Bay Area Outreach & Recreation Program (BORP) organization in Berkeley, California.

Bonnie, Lori, and Delroy share their love of nature in this podcast episode.

Both women use wheelchairs and have years of experience navigating hiking trails and organizing outdoor adventures for people with physical and/or developmental disabilities. Joining them is middle school teacher, Delroy Thompson, in South Florida. Together they share how important nature is for them.

Bonnie wrote A Wheelchair Rider’s Guide published by the Coastal Conservancy. Delroy, is a member of the Muscular Dystrophy Association National Community Advisory Committee, and wrote a children’s book, The Secret of the Elves in Helen, about an elf kingdom n the Blue Ridge Mountains.

Not everyone is fortunate enough to attend BORP events but you can search for similar organizations in your area at the National Center on Health, Physical Activity and Disability (NCHPAD) website.

What exactly is Self-Care? Years ago I used the term, Self-Management Health Behaviors to identify everything I did to enhance my health given that I was diagnosed with a chronic, progressive neuromuscular disease. Some of the behaviors were already my routine like eating a vegetarian diet and practicing yoga. As I learned more about positive health behaviors from a Stanford University program I took at my local hospital, I became more intentional about how I led my life.

Health Storylines Tool Library

Somewhere along the way these behaviors became known as Self-Care. You can find Self-Care articles everywhere — in all types of popular magazines, TV commercials — it’s entered popular culture. “As of 2012, about half of all adults—117 million people—had one or more chronic health conditions,” according to the U.S. Government’s Center for Disease Control. That’s tremendous!

Even though there are so many different types of chronic health conditions, there is a lot of overlap with symptoms. I have a rare disease but when I look at my individual symptoms — muscle pain, dysphagia, fatigue, respiratory weakness — I can learn a lot from more common conditions. And many of these common conditions have known self-care practices that help mitigate the symptoms.

Based on the Stanford research I became familiar with and my own research, I’ll categorize the self-care practices into these:

  • Diet and Nutrition
  • Physical Activity and Exercise
  • Emotion Regulation
  • Social Support
  • Relaxation
  • Medication

Once we identify our symptoms, we start to look for ways to alleviate these symptoms. What helps my muscle pain may not help your muscle pain. But, perhaps you’re like me, and you are open to exploring. The key, of course, is to explore self-care practices that have minimal if any negative side-effects. During the experimentation phase you may notice some connections; maybe you have less muscle pain on days you’ve slept at least 8 hours the night before? Or, if you have gastrointestinal issues, maybe your gut feels better when you haven’t eaten spicy foods?

It’s a lot to manage but once you hit upon some solid patterns and adopt new self-care routines, it can make your life so much better. It sure has for me.

This trial-and-error process can now be easier with the assistance of a tool. I’m thrilled to introduce an online tool — Health Storylines — to help with your self-care routines. I’ve been chosen to join a team of Self Care Ambassadors who are helping others with chronic health conditions practice self-care. We’ll be doing this together and each month I’ll take a Self Care Challenge with you. Make sure you’re part of our Facebook group so we can track, monitor, and motivate each other.

Are you ready?

Here’s what I’d like you to do over the next month:

  1. Register for the Health Storylines Tool. If you have questions about the registration process, send me a message via the Facebook group. You can use the Tool on a desktop computer, smart phone, or tablet. The data you enter will synch on all devices.
  2. Use the Symptom Tracker feature to list all of the symptoms associated with your chronic health condition.
  3. Using the Self-Care Practices categories above, make a list of self-care practices you already have as part of your routine. Maybe you attend a weekly exercise class? How does exercise impact your symptoms?
  4. You’re encouraged to explore the other features of the Tool on your own. But for the next month I’ll focus on symptoms and different self care practices that can help them. The goal is to take small steps toward changing your routines so you’re not overwhelmed and it makes it easier to maintain a steady practice.

Good luck and see you in the Facebook group!

Nicole Cavales — yoga instructor — was diagnosed with the BRCA1 gene mutation making her a high risk for breast and ovarian cancer. She chose to have surgery and reconstruction. Nicole’s plastic surgeon referred her to Hilary Nakao, D.PT, — physical therapist — to help with recovery. Both women are part of the latest podcast episode exploring how critical movement and exercise are to one’s daily life.

Nicole demonstrates range of motion exercises she learned from Hilary.

Nicole continues to teach restorative yoga classes in Northern California and also works for Hilary.

 

Is using Social Media important to you? Which platform do you use to find support from others with the same chronic health condition? If you’re a caregiver, do you access an online group to connect with other caregivers? Maybe you use social media to help educate or advocate for a particular health condition? This podcast episode explores how a variety of patients, and caregivers, use Facebook, Instagram and other social media platforms to do what they need to do.

You’ll hear from people with chronic health conditions: Toni Bernhard, best-selling author, and in 2001, initially diagnosed with an acute viral infection—but has yet to recover; Chris Schlecty, a Microsoft software engineer in Seattle, living with limb-girdle muscular dystrophy and Dean Sage, an attorney in San Diego, diagnosed with myotonic dystrophy.

Also included are caregivers — Loraine Dressler, retired nurse and caregiver for family members and Marla Murasko, Down Syndrome Mom Advocate & Inclusion Influencer.

In a post on the WEGO Health website, these links provide instructions on how to protect your private information on Facebook:

Newsweek, Facebook Data: How to Protect Your Private Information

Trusted Reviews, Facebook Privacy Settings: 18 changes you should make right away

Mashable, How to See All the Weird Apps That Can See Your Data on Facebook