What exactly is Self-Care? Years ago I used the term, Self-Management Health Behaviors to identify everything I did to enhance my health given that I was diagnosed with a chronic, progressive neuromuscular disease. Some of the…
Is using Social Media important to you? Which platform do you use to find support from others with the same chronic health condition? If you’re a caregiver, do you access an online group to connect…
My mother was diagnosed with myotonic dystrophy (DM) circa 1990 before there was a DNA test available. When my parents told me of this diagnosis they never mentioned it was a genetic condition nor that…
We’re a week into the New Year. As I understand, it’s still acceptable to talk about the new year and even make resolutions throughout the month of January. There is no mandate that this must…
Recently I attended an annual patient conference and had a conversation which served as a catalyst for a couple of blog posts and this podcast episode. What advice do you give someone experiencing apathy and…
At the recent Patient Advocacy Conference I attended, I spoke with a community member. We’ve previously met but I’ve talked more with his family members. He’s always seemed to be rather shy. He asked me…
It’s time to mix things up…just for this episode. I explore the fine art of complaining…and I complain a little. No whining though. Conversations with Toni Bernhard, Mike Hamlin, and Laurel Roth Patton included. Enjoy!
Moving Through Loss & Transition
- February 2, 2017
- Tagged as: caregiving, change, chronic health condition, loss, transition
Like nature, our lives are filled with change. This episode explores how to move through loss and transition. For many of us the loss may be diminished physical strength, our career, or the death of…
This is the first of perhaps several episodes to explore how food = medicine for a variety of people with different chronic health conditions. In this episode I speak with Retired Navy Lieutenant Laura Root and…
The Bath
- July 21, 2016
- Tagged as: CFS, chronic health condition, fibromyalgia, pain
A bath can be healing for sore muscles, a night-time transition to sleep, and a spiritual experience. It’s one of my treatment modalities. My friend, Barbara, shares her thoughts on bathing for her chronic fatigue syndrome…