Tag Archives: myotonic dystrophy

Stories of Healing with Essential Oils

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This episode features personal stories about how the use of essential oils has helped with a variety of conditions including depression, anxiety, fibromyalgia, fatigue, post-surgical pain and post cancer treatment.

If you’re interested in deepening your exploration of essential oils, please leave me a note here.

For information about Dr. Kris Gast’s medical practice you can visit her radiation oncology website or Beauty through Health website.

To learn more about Lori Melero’s alternative care practice, visit her website.

 

Skydiving, Triathaloning, and Mountain Climbing!

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Joe sky dives, Nancy runs, and Rob climbs

Three stories about people taking on physically and emotionally challenging adventures. Joe Akmakjian, who lives with Spinal Muscle Atrophy (SMA), is the first adult MDA National Ambassador. Joe celebrated his 24th birthday by jumping out of a plane with friends. Nancy, after surgery and treatment for ovarian cancer, trained for an AIDS ride and moved on to compete in triathalons. Rob Besecker decided to celebrate his recovery after a series of cardiac surgeries by climbing Mount Everest.

Glass Half Empty: Complaining, Kvetching, and Ranting

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It’s time to mix things up…just for this episode. I explore the fine art of complaining…and I complain a little. No whining though. Conversations with Toni Bernhard, Mike Hamlin, and Laurel Roth Patton included. Enjoy!

New Year Resolutions: “You must do the things you think you cannot do”

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What type of resolutions might someone with muscular dystrophy, multiple sclerosis or Parkinson’s disease have for the new year? In this episode you’ll hear from several people living with chronic health conditions. Find out more about the role dance plays in Mindy’s life and swimming in Mike’s life from their participation at recent conference panel sessions.

A Salute to Caregivers

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November is National Caregivers Month. This episode includes conversations with three caregivers: Loraine (retired nurse) who takes care of her adult daughter and young grandson, Darcy Leech — author of From My Mother:  Surviving and Thriving in a Family Ravaged by Genetic Disease — whose story chronicles her young brother and mother’s battle with myotonic dystrophy, and Cecilia’s Tips for Caregivers.

 

The D Word: Disability

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October is National Disability Awareness Month.

What does it mean to be disabled? A dictionary definition says it’s having a physical or mental condition that limits movements, senses, or activities. Does it coincide with the diagnosis of a chronic health condition? It didn’t for me. And even now I struggle with the term, and you’ll soon hear from a couple of my friends — Cheryl Sherman and Stephen Beard — who have also had difficulties with the term.

Music gives me a peace bubble

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This podcast episode features a music philanthropist — Amy Ream. From the age of 5 Amy studied classical piano but when symptoms from myotonic dystrophy impacted her hands she turned away from music. Quite recently she returned to her first love using a different instrument — her voice. Amy and her voice instructor, Marcelle Dronkers, entertained me and you get to be a fly on the wall.

Amy’s next recital is in April 2017; here’s a sample from a previous recital.

Food = Medicine (1)

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This is the first of perhaps several episodes to explore how food = medicine for a variety of people with different chronic health conditions. In this episode I speak with Retired Navy Lieutenant Laura Root and Edibell Stone, LPC & health coach about their respective diets.

Edibell strongly recommends a book that’s inspired her — The Urban Monk: Eastern Wisdom and Modern Hacks to Stop Time and Find Success, Happiness, and Peace — and finds great plant-based recipes on this website.

Working with Wounded Warriors

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Retired Navy Lieutenant Laura Root — diagnosed with myotonic dystrophy type 2 (DM2) — talks about her current work with wounded warriors as a Level 3 Shooting Coach and mentor.

Stay tuned for Laura’s blog and promotional website featuring the book she’s working on: www.AdaptedNation.com

001: My First Podcast: Who am I? Who are You?

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Leslie at MDA Dance Marathon, 1979

MDA Dance Marathon, 1979

Here it is! My very first podcast! I want to lay the ground work, a foundation, that provides an understanding of where I’ve been and what I’m most interested in doing. This episode is just me; future episodes will include conversations with others — people dealing with a chronic health condition, caregivers, as well as health practitioners of modalities some of us have found helpful. But basically — it’s all about maintaining a perspective of the Glass Half Full!