Do It for Science: End of Life Decision-Making (# 1)

 

Laboratory technician at work.

If you’d like to plan for the future and bring peace of mind to yourself and loved ones, you can engage in end of life decision-making while you’re still of sound mind and body. In this episode, Katharine Hagerman, PhD, at Stanford University talks about biobanks. If you know nothing about biobanks, give a listen and learn.

Find out more about the Stanford Neuromuscular Biobank and National Disease Research Interchange.


Stories of Healing with Essential Oils

This episode features personal stories about how the use of essential oils has helped with a variety of conditions including depression, anxiety, fibromyalgia, fatigue, post-surgical pain and post cancer treatment.

If you’re interested in deepening your exploration of essential oils, please leave me a note here.

For information about Dr. Kris Gast’s medical practice you can visit her radiation oncology website or Beauty through Health website.

To learn more about Lori Melero’s alternative care practice, visit her website.

 


Skydiving, Triathaloning, and Mountain Climbing!

Joe sky dives, Nancy runs, and Rob climbs

Three stories about people taking on physically and emotionally challenging adventures. Joe Akmakjian, who lives with Spinal Muscle Atrophy (SMA), is the first adult MDA National Ambassador. Joe celebrated his 24th birthday by jumping out of a plane with friends. Nancy, after surgery and treatment for ovarian cancer, trained for an AIDS ride and moved on to compete in triathalons. Rob Besecker decided to celebrate his recovery after a series of cardiac surgeries by climbing Mount Everest.


Glass Half Empty: Complaining, Kvetching, and Ranting

It’s time to mix things up…just for this episode. I explore the fine art of complaining…and I complain a little. No whining though. Conversations with Toni Bernhard, Mike Hamlin, and Laurel Roth Patton included. Enjoy!


New Year Resolutions: “You must do the things you think you cannot do”

What type of resolutions might someone with muscular dystrophy, multiple sclerosis or Parkinson’s disease have for the new year? In this episode you’ll hear from several people living with chronic health conditions. Find out more about the role dance plays in Mindy’s life and swimming in Mike’s life from their participation at recent conference panel sessions.


A Salute to Caregivers

November is National Caregivers Month. This episode includes conversations with three caregivers: Loraine (retired nurse) who takes care of her adult daughter and young grandson, Darcy Leech — author of From My Mother:  Surviving and Thriving in a Family Ravaged by Genetic Disease — whose story chronicles her young brother and mother’s battle with myotonic dystrophy, and Cecilia’s Tips for Caregivers.

 


The D Word: Disability

October is National Disability Awareness Month.

What does it mean to be disabled? A dictionary definition says it’s having a physical or mental condition that limits movements, senses, or activities. Does it coincide with the diagnosis of a chronic health condition? It didn’t for me. And even now I struggle with the term, and you’ll soon hear from a couple of my friends — Cheryl Sherman and Stephen Beard — who have also had difficulties with the term.


Music gives me a peace bubble

This podcast episode features a music philanthropist — Amy Ream. From the age of 5 Amy studied classical piano but when symptoms from myotonic dystrophy impacted her hands she turned away from music. Quite recently she returned to her first love using a different instrument — her voice. Amy and her voice instructor, Marcelle Dronkers, entertained me and you get to be a fly on the wall.

Amy’s next recital is in April 2017; here’s a sample from a previous recital.


Food = Medicine (1)

This is the first of perhaps several episodes to explore how food = medicine for a variety of people with different chronic health conditions. In this episode I speak with Retired Navy Lieutenant Laura Root and Edibell Stone, LPC & health coach about their respective diets.

Edibell strongly recommends a book that’s inspired her — The Urban Monk: Eastern Wisdom and Modern Hacks to Stop Time and Find Success, Happiness, and Peace — and finds great plant-based recipes on this website.


Working with Wounded Warriors

 

Retired Navy Lieutenant Laura Root — diagnosed with myotonic dystrophy type 2 (DM2) — talks about her current work with wounded warriors as a Level 3 Shooting Coach and mentor.

Stay tuned for Laura’s blog and promotional website featuring the book she’s working on: www.AdaptedNation.com