Featured are four people — with their own unique health conditions — that are making the best of the quarantine and pandemic. Luda Gogolushko, who has SMA Type 3 and lives in Southern California, continues…
It’s not that easy being RARE…
- February 27, 2019
- Tagged as: advocacy, myotonic dystrophy, rare disease, research
February 28 is International Rare Disease Day. There are over 6,000 rare diseases or disorders with 80% having genetic origins. Global events are planned to draw attention to the need for medical research. This brief,…
