When I was diagnosed with myotonic dystrophy I don’t remember hesitating before making my way to a support group meeting. I didn’t have preconceptions; all I wanted to do was meet others with the condition….
As a child I used to read a lot. In elementary school, they’d give awards to kids who read the most books each year, and I was often one of the winners. But by high…
Here it is! My very first podcast! I want to lay the ground work, a foundation, that provides an understanding of where I’ve been and what I’m most interested in doing. This episode is just me;…
Yesterday I attended a memorial service — or as Nancy, spouse of the recently departed, prefers to say, “celebration of life” — for one of our support group members. In the 11+ years I’ve been…
I wish I could remember what I first thought of when I heard the words support group. Once I was diagnosed with my condition, nearly 12 years ago, I didn’t waste any time contacting the…