Glass Half Full with Leslie Krongold, Ed.D.

Tag: mental health

  • Media Representation: Do you see your life reflected in popular media?

    Media Representation: Do you see your life reflected in popular media?

    Do you see images of yourself reflected in popular media? As a person with a chronic health condition and/or disability, is your life reflected in movies, television, print, or social media?

    In this themed podcast episode you’ll hear from Christophe Zajac-Denek — an actor, musician, surfer, skateboarder, and little person — whose podcast, I’m Kind of a Big Deal, explores the unique lives of people with dwarfism. Christophe has worked in Hollywood movies for 11 years but rarely do you see his face.

    Lindsey Kizer, recently diagnosed with narcolepsy, appeared in an earlier podcast episode. Her experience of narcolepsy reflected in media has usually been a joke with the character falling asleep mid-sentence.

    John Poehler is a published author and award-winning blogger in Colorado. Diagnosed with bipolar disorder in 1999, John’s memory of mainstream media’s representation of people with bipolar disorder was far from accurate.

    Daniel G. Garza, an HIV/AIDS patient leader, advocate, and educator talks about the first movie where he saw characters portrayed with HIV/AIDS. Daniel has a blog/podcast and YouTube channel.

    Ania Flatau, an avid dancer born with spina bifida, was featured in a previous podcast episode, Ania has never seen spina bifida represented in popular movies or television but she is quite proud of a certain wheelchair skater, Aaron Fotheringham.

    For those with myotonic dystrophy, like myself, all we have is this documentary, Extremis.

    Transcript

    welcome to glass half full with leslie krongold she shares her stories experiences and knowledge of living and coping with a chronic health condition learn about tools and resources and hear inspirational interviews that help you to live a life filled with quality and dignity with two decades of support group leadership leslie’s ready to help you make lemonade out of life’s lemons are you ready are you ready welcome to the glass apple it’s our first episode for 2021 took a little break no vacation just working on social media the website search engine optimization oh so many things behind the scenes but we’re back this episode is all about how we’re represented in popular media on television in movies print and social media whether we have a chronic illness a disease and or disability are we seeing ourselves reflected in popular media i know i’m not i think i can safely say i’ve never seen a character with myotonic dystrophy on a tv show or in a movie well there is a documentary it’s called extremists extremists extremists and it’s about a palliative care doctor and one of her dying patients has myotonic dystrophy it was incredibly painful to watch and several years ago there was a tv medical drama called royal pains i didn’t watch this series but i saw facebook posts from people in my patient community that there was an episode that mentioned myotonic dystrophy so i mean sure i found that episode i uh i marched it only to be let down it mitotic dystrophy was mentioned as a possible diagnosis for a patient i don’t even think you saw the patient but it was quickly discounted so like you could sneeze and miss the whole thing so again to thinking about the power of medium representation over the last few months i’ve interviewed a few people people with different health conditions or disabilities to hear if they felt represented in popular media the first person you’ll hear from is Christophe Zajac-Denek that’s a hyphenated last name not just multi-syllabic i met kristoff at a virtual podcast conference he’s originally from detroit but because of his avid interest in surfing skateboarding and punk rock he made his way to southern california Christophe identifies as a little person and has a podcast called i’m really a big deal he shared with me that there are between 200 and 250 different types of dwarfism and people exhibit different symptoms depending on which type of dwarfism they have the condition that Christophe has is called cartilage hair hypoplasia in your lifetime how have you seen the media change in the representation of little people and when when did the term little people become i’m assuming it’s acceptable yeah like are people that you met in your community do any people resent that term or is it a term that came out of your community sure yeah those those are really important questions the tour i’ll start with the term little person the term little person is acceptable um you could also say dwarf however when i’ve posed this to guests on my show some of them have strong feelings

    in us in a way that they don’t that doesn’t define them and so they don’t want to be called a little person or a dwarf they just want to be called by their name and just like we all do you know your condition does not define who you are so in that same breath that’s the same with us you know little person is it’s it’s fine it’s pc so is dwarf you know um [ _ ] or the m word as people refer to it as is not okay um you know but words are just words in a in a sense and if if somebody actually wants to come up and have a conversation with me and say you know if they were to call me a [ _ ] or something like that and i wanted to if i saw value in the in the conversation or you know where where this was somebody that was just maybe misdirected or something like that and even if they’re not you know it’s still okay to say hey that’s offensive and that’s not all right to call somebody out like that my name is Christophe in fact another guest on my show does that and he is incredibly brave um whether they call him out as an offensive term or not he will go up to people and say hey you know the proper terminology is this but also my name is joseph and it’s nice to meet you and i was born this way and he interacts with kids on this level and i i never would be i i’ve never been able to do that before you know maybe this past year or two because you know it’s still accepting yourself and all of my friends that i’ve shown that to as well they’re like that’s so cool i don’t know that i got the balls to do that just to you know go up to a mother and a child and to confront the situation and and because with each situation that passes if it’s not rectified or if there isn’t some sort of positive interaction or a teaching moment or something like that that’s a moment that’s lost and that’s another moment that goes by where it’s okay to maintain confusion about how to interact with us or other people with disability you know and to me the whole reason why we have that is because the media doesn’t include us you know i’ve worked a lot of show i’ve worked in hollywood for 11 years and you’ve seen my face once maybe twice you know and it’s not because i haven’t worked it’s because hollywood covers me up for everything you know my face is covered in prosthetics or makeup or just costumes and masks and crazy wardrobe and things like that and trust me i want to do that stuff because it’s fun and i can do that stuff and i need the work so please pay me but also you know you just complimented me on my face and i’m not searching for compliments but i’m not this disgustingly grotesque object that seen in a commercial or in and i’m not saying myself i’m saying all of us you know everyone everyone that meets my friends with dwarfism think that they’re incredible they’re like your friend is so cool how they’re so awesome i never you know knew another little person before them or you know before you or whatever and it’s the personality that shines through right and that becomes inaccessible when little people are hired as props or just warm bodies to move around a costume or some foam or something like that and so that’s how i see how society sees us you know and it’s taken me a long time to figure that out because remember how i said i would get paid you know 10 to 100 times as much you know in a costume as i would get playing music well there’s the there’s the hook right there right money but then once you start to think about it and you you’re thinking okay well i’m i’m not getting any equity on my face or my skill because i’m in a costume they could have hired anybody and there’s just a list and if whoever said the first yes is going to get the job so it doesn’t matter you know what i look like in that regard and i think that that’s sad and i i do think some stuff in hollywood is turning around for the better with that i mean peter dinklage is blazing a trail and he’s awesome and i’m i’m really proud of him and what he’s done and the station agent i love that you mentioned that film that film is is incredible that when i first saw that i was thinking who knew who knew about me this is crazy it’s actually i’ve identified with that so much and just more of that is what i think we need and you know even when there are certain things that in my eyes are exploitative i still see there’s a part of me that still sees value in you know like the little women of la and dallas in new york and stuff i mean it’s a reality show so there’s going to be ridiculous drama and things going on but still you get to see little people you know it’s it’s not i i don’t see that as steps backwards i see it as steps forward even though it’s it it’s this fantastic thing and it’s it’s reality tv and stuff like that i i respect that there’s a show that that shows us you know and and because you have to work on opening the door somehow and i think that you know what tara created is important and it’s good and it’s gotten attention of a lot of people the next person i spoke with is Lindsey Kizer in north carolina Lindsey appeared in an earlier podcast episode about coping with COVID she was diagnosed over a year ago with narcolepsy what do you think the biggest misconception people have about narcolepsy you know whether it’s friends or family members just in general i think you know most people think it is like what you see on tv you know where someone can be you know mid-sentence or you know doing whatever normal activities and they just in an instant fall asleep out of nowhere and that’s not how it happens at all you know i don’t really know where that has come from um because even that’s not even something recent as far as the past few years you know that’s been over time and it’s you know being diagnosed i really saw how people really believe that you know co-workers not really friends because they had kind of seen some of the progression up into up to my diagnosis but i’d even say acquaintances and even you know new co-workers and people that had met me after when i say have narcolepsy i get the question either what is that or wait so you’re just gonna fall asleep while you’re talking to me that question would make my would make me cringe so bad for so long how does popular media tv television books and you know i guess social media too how how do they portray narcolepsy i mean it for most people it’s a joke um you know one of the first movies that anyone ever mentions is always deuce bigelow um and he goes on the date with the girl and she just you know middle of dinner after he drops her off at the house you know she’s falling asleep out of nowhere and that really is the image for a lot of people that you know i’m gonna be talking to him or sitting at dinner and i’m just gonna fall asleep you know my face will be in my food um you know i’ll fall and hit my head something like that and a lot of them after they you know spend time with me you know they do realize that that’s not true or some of the ones that you know had that perception and had no idea i had narcolepsy you know that does change social media i do think is starting to do a really good job especially thanks to some of the organizations at trying to correct that narrative because there are a lot of people that are very outspoken about that not being the truth on social media and i do think that’s starting to but that’s definitely a big mountain to climb because it has been something that’s you know been drilled into people’s heads for many years thanks to movies tv shows and who knows where this idea came from well you know i i never saw deuce bigelow um but i did see rumblefish did you see that okay i have to interrupt for a moment now i’ve since realized it was not rumblefish i saw i mean i didn’t see that movie and it’s by the same director gus van zant but it’s his other movie my own private idaho from 1991 which features the actor river phoenix as a character with narcolepsy it’s older than deuce bigelow so maybe that’s why you haven’t seen it okay and and that was the first time i think it was river phoenix who was in it do you know who he is i have heard the name i could not think of that face off the hell in my head right now well he’s uh he’s since deceased but he is or was joaquin phoenix’s brother i guess his older brother and he was in a movie um gus Van Zant i think that’s the filmmaker and it was very it was kind of an art house movie so it’s very attractive to visuals but he river phoenix’s character did have narcolepsy and for me that was the uh first time i ever heard of the condition and i was probably in high school or college so it could be like 30 years old the movie so maybe but it was a drama and then so it wasn’t you know i it would be interesting for you to see it and then tell me what you uh what your take on the portrayal is because i i’m sure it was a bit more empathetic than a you know comedy like so many fallen you know their head in the soup or something i definitely will have to check it out because i have not seen it come up you know most of the tv and movie portrayals of it it is more of you know a comedy show or movie so that definitely would be interesting to see you know if it does have more of an accurate portrayal for sure back in october of 2019 oh so long ago when we traveled freely i went a trip to las vegas to attend the health conference i went from wego health it was a huge conference and it’s hard to imagine being in a crowd like that now but i got to meet other patient leaders from all over the country and one of those patient leaders is John Poehler john lives in fort collins colorado and he wrote a book which was published in 2020 it’s called this war within my mind based on the blog the bipolar battle i think it was right before christmas that i talked with john via zoom and we were both well bundled for the cold anyhow john really stood out for me at the conference he’s very warm and friendly so i have looked forward to including him in this podcast so you were diagnosed in 99 right right yeah so in the 21 years how have you experienced people’s reaction and understanding uh to bipolar condition you know when you when you talk to people has do you feel like people are more understanding now than when you first were diagnosed oh definitely definitely beyond the shadow of a doubt because when i was first diagnosed i know a lot of people when they are diagnosed they kind of they deny it at first they’re like oh my gosh why me i was actually really excited about it because i’d been searching for answers for a few years and so to finally have a doctor say john this is what you have and it matches up completely and not only do you have this but we can manage it it’s not like a death sentence or anything we can we just need to find the right treatment for you and so i shared it with a lot of my friends my family and so forth but i found out real quick that especially back then there was a huge stigma i lost a ton of friends um and i just i had a lot of bad experiences with broken friendships relationships because of my illness and actually i haven’t really been open about it until the past i started my blog at the beginning of 2017 and that’s when i just decided i’m gonna tell everybody you know i don’t it doesn’t matter to me anymore and i actually have a good response and that’s why you know when we met last year in las vegas you know getting that award on twitter that was really showed me wow people are starting to understand more and you know there wasn’t a wego health back when i was diagnosed there weren’t any of these huge organizations that you see now and so it’s it’s definitely a lot less i feel a lot less stigma compared to the way it was back then you know i don’t necessarily think like in you know mainstream media i don’t feel like it’s portrayed as accurately as it could but i mean it’s better than it was back then how has the media in popular media whether television books movies uh celebrities you know coming out how how has it changed over the years from my perspective just from what i’ve you know i’ve experienced when i was first diagnosed i tried to watch a bunch of the movies that you know portrayed characters that had bipolar disorder and i couldn’t relate to any of them at all it just seemed like they were more stereotypes of what someone with bipolar disorder lives with and the past few years i’ve seen a bunch of new movies come out and they’re getting closer but in terms of portraying portraying us as a character on tv i haven’t really been too excited with what i’ve seen there’s one movie i’ve seen that the director he has bipolar disorder and he acts in it and it’s an independent film and i saw it last year i previewed it and that’s probably the closest that i could relate to because it was from his story it was based on his life and i totally could relate to that so it’s come a long ways that’s for sure in terms of like actors actresses um people on the you know that you hear who are some examples of kanye west yeah yeah that’s i’m yeah that you know yeah that’s kanye west i know he i know he has bipolar disorder and it’s you know i i feel bad for him because you know i could you can see that he’s suffering and we have i have no idea obviously we don’t have any idea about personally what’s going on with him but seeing his outbursts and stuff i mean i can relate to some of how he’s acted so in terms of the reality of what like untreated bipolar disorder looks like i think that you know that he’s an example of that um but there’s others too there’s a there’s a gentleman on a general hospital in maurice something i’ve man i wish i don’t remember the name names too well but he’s a i i’ve i’ve heard him speak and i’ve read articles in bipolar the bp hope and he is great like he speaks out and i really like what he does so the the actor is on the as bipolar but not yeah yeah oh okay yeah he actually has and i think they put it in the script i’m not sure but in terms of him and talking about it it’s for me it’s it’s awesome to see someone in a light like that that has you know so many followers so many people that he’s in the spotlight and he feels so comfortable just talking about mental health bipolar disorder that’s i think that’s a lot different than way back when but then of course you know we can’t leave out carrie fisher i mean she was uh she’s been you know spokesman spokeswoman since the very beginning so and she’s been always just so cool so yeah no i always forget that uh she did come out at some for me i think the most you know just as terms in terms of a character the main one i think about is from homeland claire danes yeah you know you know how different communities i’m i’m jewish and you know when something comes out in the media and people always go is it good for the jews is it bad for the jews so i always think that different sort of minority communities do that you know so was that portrayal how did people in the bipolar community was there talk about her character and there was actually i think she actually uh spoke with uh influencer at some somebody who has bipolar disorder and kind of got she she was consulted by her and uh supposedly she used that to for character or whatnot but a lot of people that i spoke with thought that they did they didn’t portray it as well in the actual script you know as her as a character as an actress i i think she does an awesome job with it you know but she’s not the one writing the script you know and i don’t i think some of the storyline it just doesn’t really drive and make sense with some things like uh she was she stopped her medication and then she got psychotic and manic and like she took her meds again and she was fine like the next day and that’s completely you know i mean you know it’s like these meds don’t just kick in like that and it’s like oh a day later i feel 100 you know so you know just things like that so but i think it’s good that they you know the consensus from everybody i’ve talked to is the same it’s you know it’s nice seeing characters in actual the you know on screen that they’re trying to portray bipolar disorder which is you know really good i haven’t met Daniel G. Garza in person but i’ve seen him virtually many times daniel has been a long time patient leader advocate and educator for hiv aids he has a very impressive resume he’s a board of director for a health center an ambassador for a number of non-profit organizations winner of the hero of hope award for patient advocacy from ipain international foundation as well as having a number of media outlets his own podcast youtube facebook live daniel has a lot going on so this is just an excerpt from our recent zoom conversation you’ll hear more from daniel in a future podcast episode he represents two patient communities those with hiv aids and anal cancer what are your feelings about how popular media has represented you know hiv aids people with hiv aids and or people with cancer and in particular you know anal cancer i think let’s let’s say aids i think aids for a long time aids was just death people just died and one of the very first movies that i ever saw about aids was a movie called it’s my party with um eric roberts uh gregory hunt griffin heinz i think it’s rare anyway he was on on gonzo anyway uh Margaret Cho in it uh uh john is in it there’s a lot of great actors in the movie and it was about how men of that time who were positive and were dying would commit suicide and right so that their families could collect the insurance com money but they would make it seem such a natural debt so that the families would like the insurance and that was one of the first movies um interesting enough my mom and i got to see that movie together when i was really sick in spanish so after i was diagnosed her and i was it was on tv in south texas in spanish and she watched it with me and that changed her view on hiv i think media also print if you open a magazine and you see a medication for hiv and aids they always pick the most beautiful buff guys and they’re out hiking looking at the sunset and it’s so pretty but it’s not always like that medications doesn’t always no um i i think we could do a lot better i think we could do a lot more i think that we need more latino we need more spanish information out there medication doesn’t medication is good for your body but it doesn’t always make you feel great and i hope people can understand that difference like it’s good for me i know my medications are good for me i know they’ve made me strong i have a strong immune system my t-cell count is undetectable i have great hair like everything’s good but it doesn’t always make you feel great there are complications even after all these years of medication there are days when you know diarrhea happens or constipations happen or your mood swings and and i think we need to talk to people about that i i think we lost a little bit of the fear that we had for HIV um back and and people got very like oh there’s a pill like i can no yes yes there is a pill but this is not a club that i want you to join just because it’s not that bad um it it is that bad it is it it affects your mood it affects your relationships um for some people it affects your your vision of your future there are still people in 2020 that i know of who have not told their families that they’re HIV positive there are people who hide their medications in aspirin bottles so that their family doesn’t know that they have HIV so no it’s it’s yes we’ve moved a lot forward in treatment and in services but we we haven’t let people catch up yet and i think that’s where we need that in media we need that representation out there um cancer man um i think anal cancer

    is the butt of the joke and all this i think we don’t talk about it like we we should and i and i’m also guilty but i should i as a um anal cancer survivor i should be more aware of what i talk about and how i talk about it and what i say out there um and i don’t do it mainly because HIV has always been my main focus but it’s connected and i should be more of that and i think and please anybody watching or listening this is not bulletin belittling any other cancers but i think breast cancer has always been up front breast cancer has always been like the main cause that a lot of people go to when they when you hear cancer i think a lot of people go to breast cancer and then everything else falls behind nobody intended uh but i started a facebook page for us to me men with ostomy bags and

    there’s there’s lack of communication in the group i i don’t i haven’t figured out how to get people or gentlemen to talk about it it’s very difficult to get the conversations going because um cancer affects a whole lot it doesn’t just affect your body it’s body mind and soul cancer as a gay man has affected my relationship with my partner not just emotional but physical intimacy not on his end it’s all me because i i put barriers and i set up walls uh because i haven’t had a chance to sit down with other to be very specific to with other gay anal cancer survivors and go how does this affect you with your relationship how does it affect you sexually uh how do you see your body now my last guest for this episode is Ania Flatau who you may remember from the last podcast episode about dance Ania lives in southern california is an avid dancer and was born with spina bifida have you seen you know growing up or now as an adult any images of people with spina bifida they you know had an impact on you positive or negative oof um you know not really like i mentioned like in the the spinal in spinal disability spinal cord injury world i’m growing up i saw a lot of images and and like there’s even a show on tv called push girls oh yeah like all of the representation i saw growing up was people with um spinal cord injuries and um you know i grew up thinking that it was because people like people who are in the mainstream society kind of look at spinal cord injuries as like for lack of a better term sexier than spina bifida so like their stories like they they relate more to the stories of people who’ve gone through trauma than they do you know somebody who’s going to talk to you about like a neural tube defect you know and i was born with blah blah blah blah that’s how i grow up grew up thinking and um i never really saw a lot of images of like influencers with spina bifida and that’s why i feel like it’s so important for like when people with spina bifida have like their conferences and their get-togethers for people with spina bifida that they realize that like even if you’re like not an influencer and you’re not famous because you lived your life with spina bifida and you you work and you you you live your life and and do it to the best of your ability you are an influencer you don’t have to be on tv to be an influencer as long as you’re living a life and and doing something that someone behind behind the lens is looking at and going like i want to do that you are an influencer and you are making an impact um in somebody’s life i’ll give you a quick story so when i graduated from college right um i brought my friend with me who has cerebral palsy and he was struggling with the thought like do i go to school do i not go to school just the fact that he saw me graduate and that i had my diploma in my hand was enough for him to go i’m going i’m going to college like this is what i’m going gonna do and that’s what i mean like you never know who’s looking and you never know who’s like watching every step that you make and is drawing inspiration from what you do yeah i think that like you really don’t have to have that i’m famous label to be of influence every single one of us has that ability that’s my answer to that question um i think that like even though we’re not on tv it’s okay because there will be somebody in your immediate community that is going to make you go that is freaking cool i want to do that you know like you know like well okay i lied there is aaron fathering him aaron fatheringham has spina bifida and you know he’s competed in nitro circus and he’s definitely made a name for himself so he definitely is i haven’t heard of him what does he do no he doesn’t he’s a i mean i’ll google it but yeah he does um it’s i can’t remember the specific name for it but basically it’s like wheelchair skateboarding so if you if you look up nitro circus it’s this massive um like extreme sports um i don’t even know like competition like they have biking and and skateboarding and like they do all these massive tricks and he’s one of those people that like like he was the first person in a wheelchair to do a backflip on a massive like really massive skate skate ramp wow so yeah he is definitely one of those one of those people who is like you know he’s made a name for himself and and you know you throw his name out there and you have spina bifida like 90 90 of us are gonna know who he is um yeah that guy’s crazy but um i mean i would never do it but i definitely see him and i go okay he’s he’s living his best life so why can’t i you know what i mean like whatever that whatever that definition is for you just live your best life is like i think that that’s the point of being an influencer is like seeing somebody killing it and you being like i can do that too you know well i think i can say that none of us seem to be thrilled with how we’re represented in popular media about a week ago i was on a community we go health zoom call and a woman on the autism spectrum urged all of us on the call to boycott a movie i wasn’t familiar with this so i googled it and the movie is called music and sia the musical performer is the director apparently many in the autism community find the yet to be released film offensive it includes spirit stereotypes and they’re upset that the character is played by an actress who is neurotypical of course i can’t comment on any of this since i know few facts but i invite any filmmaker or writer to include a character with my atonic dystrophy in their next creative work and i won’t mind you know if elizabeth moss amanda pete or kate planned [ __ ] play her or me

    thank you for listening to glass half full leslie invites you to leave a rating and review on iTunes this helps spread the word to others dealing with chronic health issues for show notes updates and more visit the website glass half full dot online class half full dot online

  • Ha Ha, Hee Hee: Laughter Therapy, Laughter Yoga

    Are you feeling stressed out? With all that’s going on in the world — pandemic, civil unrest, job loss, hurricanes, wild fires — it’s difficult to avoid stress.

    Laughter therapy, or laughter yoga, might help alleviate some of the stress. It’s free. It offers numerous mental and physical health benefits. And it’s fun.

    In the field of psychoneuroimmunology, laughter has been studied and found to lower blood pressure, strengthen cardiovascular function, improve circulation, boost immune function, trigger the release of endorphins, and produce a sense of well-being.

    You’ll meet Annie Goglia, a certified Laughter Yoga Leader, who shares her story how laughter transformed her life. You can even join her, virtually, at her Laughter Club.

    To delve deeper into your exploration of Laughter Therapy, check out the Comedy Cures Foundation and Association for Applied & Therapeutic Humor.

    The University of San Francisco Osher Center for Integrative Medicine offers classes in Laughter Yoga as well as the Founder of Laughter Yoga, Dr. Madan Kataria.

    For more laughs, check out these podcast episodes: Life After Cancer, Laughter is the Best Medicine; and Put a Pink Ribbon on this Actress…

    Transcript

    welcome to glass half full with leslie krongold she shares her stories experiences and knowledge of living and coping with a chronic health condition learn about tools and resources and hear inspirational interviews that help you to live a life filled with quality and dignity with two decades of support group leadership leslie’s ready to help you make lemonade out of life’s lemons are you ready are you ready we can all use a little more laughter are you agreeing i mean this is a tough time and that’s coming from a normally optimistic person me most of you listening likely have some type of chronic health condition that presents challenges for you with every day living now if you are more vulnerable like me with respiratory issues or maybe a compromised immune system you’re on high alert during this pandemic even quote unquote healthy people are at risk and maybe you’ve also lost your job or your work hours have been cut or like me your spouse has suffered a job loss which impacts your household and then we’ve got a lot of civil unrest and maybe you’re in the path of a hurricane or the air quality is super unhealthy because you live near wildfires like myself jesus episode is about laughter what am i doing going on and on like this the fact of the matter is we are all stressed out and if you’re not stressed out what in the world is wrong with you okay so we’re in agreement right you’ve gotten stress i’ve got stress people across this whole world are all stressed granted some have a bit more stress than others i can’t even imagine what it’s like to have to evacuate my home because of fires on its trail it’s a totally different enough to crack and i don’t think laughter therapy is the best antidote not yet ironically and here’s how i bring us back to the topic two years ago i was scheduled to interview a nurse about laughter yoga she teaches laughter yoga and meditation at the university of san francisco’s school of medicine

    the day before our scheduled interview she sent me an email message that she needed to cancel because her cabin in lake county california was under evacuation orders for the fires the good news is that she’s fine i went to one of her laughter yoga sessions earlier this year pre-coded my intention was to return to her class again and reschedule the interview but that didn’t happen but i do have a guest and she’s in fact the very first person i experienced laughter yoga with

    there’s a field of research about after therapy this type of research lies within psych neuro immunology which is the study of the interaction between psychological processes and the nervous and immune systems of the human body i don’t know when this term psych neuro immunology was coined but the scientific research has found laughter to be really good medicine some of the health benefits include lowering blood pressure strengthening cardiovascular functions reducing stress hormones and improving circulation increasing muscle flexion oxygenating the body by boosting the respiratory system immune function by raising levels of infection fighting t cells disease fighting proteins called gamma interferon and b cells which produce disease-destroying antibodies triggering the release of endorphins the body’s natural painkillers and producing a general sense of well-being pretty convincing results don’t you think so with all of this stress upon us maybe we should try working in a little healthy so what is laughter yoga it’s a fairly recent phenomenon an indian physician madame kettarian developed an exercise routine he calls laughter yoga it’s a combination of laughter and yoga breathing laughter yoga practitioners do not use asana or yoga poses as part of the routine so if you can’t do a great down dog don’t worry dr catorius started the first laughter club in 1995 and today there are more than 20 000 free social laughter clubs throughout 110 countries

    my introduction on laughter yoga was several years ago i probably had read about laughter yoga and then i did a little research to find a local practitioner and that’s how i found annie golia my guest for this podcast episode i was facilitating a monthly support group for adults with neuromuscular disease we would meet at the kaiser permanente hospital in oakland california and annie happened to live nearby in oakland and she graciously joined us one sunday and led us through several laughter exercises it was not until many years later when i attended my next laughter yoga class at ucsf and during coven so far i’ve attended a couple of virtual laughter yoga sessions so anyhow here’s annie my first question and you know i don’t even know if i asked you this years ago when you came to the support group but how and when did you discover laughter yoga ah well i think it was 2005 or 2004 and i was living in the boston area and i i was very i was pretty shy when i was younger and as i got older i realized humor and laughter were things that helped me connect with people and get over that shyness and i i became quite the laugher and people with friends would tell me you should become a professional laugher or i knew you were in the room because i could hear you from from across the room so when so i thought well that’s funny professional laughter there’s no such thing and then i found out about laughter yoga some friend told me like there’s this thing that adults do and they get together and laugh together and i’m like that sounds spectacular to me so i joined a group and near where i live near boston and i loved it and then i moved here about a year later and i found a training and that’s and then i took a training with dr qatar it was the founder of laughter yoga and now i and then i also started to train other people to lead after yoga so that was almost 14 years ago is he in india or is he located in the united states he is in india he was then and originally he was in mumbai but now i believe he’s in the kind of silicon valley area of india and do you actually travel to india to city with him no no uh he does do trainings there but i at that time he would travel to the u.s to do trainings so it was near la and sierra madre oh okay and so previous to this when you said you were shy have you you know in high school or college done any kind of acting or improv or any of that not so much then uh i did i i think it was later on i got interested in when i was in my 30s i started to do storytelling and that’s before and after yoga yeah yeah and that really got me out of my shell a lot and then i started to take some improvisational classes too movement and storytelling improv so yeah it all kind of comes together in life together it’s very improvisational and playful and creative and brings all my fun stuff together so may ask what did you study in in college i was an english major

    not literature did you teach did you go and teach after that or i eventually i got a master’s in arts and teaching and i taught for less than a year and that was the end of that oh my god did you hate it it was very very challenging and it was really hard to find a decent job in teaching at that particular time especially in english and so yeah it just did i wasn’t suited to it so then i ended up doing a lot of human service jobs for many years once you started uh you know working on laughter on your own and then discovering laughter yoga how did it change your life i think it’s it’s it’s kind of sneaky it kind of sneaks up on you you practice it the more you laugh the more you laugh we like to say and there’s a lot of things in left yoga that are intentionally meant to help you bring laughter into your everyday life we call them values-based exercises so for instance there’s something called argument for argument and forgiveness laughter so we argue with laughter and then we forgive with laughter and that’s a great way to just remember when you’re having a disagreement with somebody in your life like is it more important for me to be right or is it more important to have a nice relationship with this person i think things like that and then also just just remembering that laughter is a possibility when things are stressful especially minor things for instance uh one time i was carrying a plate of spaghetti with sauce on it down to the dining rooms in the kitchen and i tripped and of course i was in a hurry i tripped and i ended up all over this bookcase bigness and and i was really bummed out because i thought oh my god this is going to take so long to clean up and like first i was really pissed and then i’m like but i could laugh and it was much more fun and so i did and it made cleaning it up much more enjoyable and then one of my housemates was there and that person also started to laugh when he saw what was going on and it just like made both of our days more fun because of laughter yeah and and other things like like one time i was taking my bike out of the garage and i was going backwards with my bike and i started to fall on my back and before i hit the ground i started to laugh and because of that i i really didn’t hurt myself i think it just relaxed me and wow yeah so it’s really useful that’s this laughter thing yeah i mean over the years i have read you know different articles and i know there’s even you know peer reviewed scientific research about the health benefits of laughter yoga or laughter therapy which i’m thinking is kind of synonymous isn’t it laughter therapy laughter yoga pretty much yeah i mean it can be just like kind of entertaining and fun but there is a therapeutic aspect of it absolutely when when did you become a practitioner how many years have you been you know leading people i started leading into in january of 2007. okay mars you’ve been doing it a number of years and have you met people with different types of health conditions where they were seeking it out as a therapeutic you know modality yes um well certainly people have come who’ve been feeling i don’t know about depressed but down you know feeling down and needing needing something to cheer them up i mean i think people come to laughter yoga because they feel like they need more laughter in their lives and so and some of those people may have some mental health issues and they’re also you know people just want to be healthier they want some mode a way of becoming healthier and relieving stress i think really mean stress is a big reason people come to laughter yoga and certainly there’s plenty of stress to go around right now and stress causes inflammation in the body it causes the body a lot of wear and tear and it can cause heart disease cancer dementia so all of those things you know it’s a great preventative and if you have those things it’s certainly useful to help heal so i’ve done it a lot for elders who have all kinds of health issues i’ve done it for people who are on dialysis there was a study that we did i was part of a study that actually went in and did laughter yoga for people while they were on dialysis to see if that would help them and actually you could see their blood pressure on the machine and you could sometimes see it like going down wow interesting now so they were hooked up to the machine yeah and experiencing a class a section of laughter yoga yeah yeah that’s amazing

    so you also do it in corporate settings right i have a little bit yeah and so is that are you brought into like hr and is it like some section of the staff and often it’s a manager who’s like i want to bring some stress relief or fun for the staff a way for them to cope with the stress of the job and so i try to always customize it for people so i find out what are these people’s stressors or challenges and also what do these people need to celebrate because life yoga is just about relieving stress it’s all also about learning to celebrate what we need you know and not just the big things in life but so important i think what one of the things i’ve learned from left yoga is celebrating the little things in life so we can say yay very good very good yay over like you know i i got up and took a shower this morning i mean i’m like it doesn’t have to be i’m still breathing it’s all relative though you know it is especially now in the pandemic exactly so so are there are there in your experience are there certain types of people that you find are more receptive i think there’s some people who’ve just decided for themselves i’m too serious i need more laughter in my life or i’ve got some issue and i think laughter would be good for me so there’s those people and then there’s the people sort of more like me who are like oh my god i want a place that i could just laugh like crazy and people don’t think i’m crazy you know um so i think those are the two biggest groups i think that come to us but and then there’s other people too but i think those are probably and is there any kind of generalization you can make about people that just don’t uh you know it’s just not they’re not their thing well i mean truth be told i i’m so i think you were the first experience of laughter yoga for me and then over the years i attended a couple of other sessions at ucsf yeah in person and then since the pandemic i’ve done a couple online classes and i don’t know how much you know about me but i embrace all modes of non-invasive healing modalities and for some reason it’s i’m i have not it just it doesn’t i mean i don’t have an adverse reaction yeah but i’m just not fluid with it yeah i think it depends totally on somebody’s openness and also on their personality i think some people just have a really hard time letting go and getting silly because i think silliness is really and feeling safe enough in the group is really really really important so i think that some people just you know i think it’s as as when we’re growing up we’re told when we’re told to grow up when we’re little what does that mean it means get serious get responsible it doesn’t mean have fun have a good life you know it means so we learn that being an adult means means getting serious and being responsible and those are not bad things to be but it kind of leaves out a whole other part of life so i think laughter local calls on us to have a more childlike approach and to see that to open up that side of ourselves to be silly to be playful and for some people that’s really hard i’m not saying you are like that but for a lot of people that is very challenging and they’re just like kind of frees up and they they’re like oh this is too silly for me or uh it’s too embarrassing um or it feels fake that’s the other thing i hear sometimes yeah i mean i’m you know i’m i’m open to still you know because every once in a while i come back and i’ve often wanted to do a podcast on it you know what works for me isn’t going to work for someone else and vice versa i mean they’re just um many different paths to hopefully the same goal of just leading a better life yeah but i tell people if they feel like that kind of sense of embarrassment or or inhibition to think about it as an exercise i’m doing an exercise for my health and hopefully elevating my mood as well because we still get that we still get the benefit out of it even if it’s intentional laughter even if we’re not laughing spontaneously so a lot of times i don’t feel like exercising i have to push myself to exercise and so this is a form of exercise and so i encourage people to take that bring that kind of experimental or decision of deciding to laugh because i know it’s good for my health and then often almost always people end up spontaneously laughing in the group there’s this sense of safety and sense of connection and and they say that actually most people laugh not because of humor not because of jokes but because they’re with a group of people they feel safe with and they’re just they’re just really kind of laughing just because they’re together that’s interesting so in the in the laughter clubs that you’ve been affiliated with is there a sense of community that’s fostered yes i i mean i i can’t speak for all laughter groups but i i do feel like the woman who ran the group that i went to in boston really worked on that and had regular people and and really tried to get people to share and connect with each other and i really tried to nurture that in my group so there’s regulars and then there’s new people we try to welcome the new people and that’s fine and but i do try to make sure people feel like they get to connect in a real way even if it’s um even if they’re there for the first time that they get to have this connection with a group that’s safe and enjoyable that might be the key for me you know is that in you know it did feel a bit like artifice but had there been more time where i actually got to know the people um and and the idea of like building that safety i mean because it is you know one it isn’t opening up to laugh freely and you know kind of that whole full-body jewelry experience is certainly yeah kind of intimate yeah it is oh absolutely it is and i tell people like to try to channel their their their childlike self that because when we’re kids we generally most kids don’t say oh i have to talk to this person to get to know them first before i want to play with them

    i have to know what work they do or where they live or whatever they just like let’s play let’s play and so i try to like encourage that like getting to know people on a different level than the intellectual one or the the verbal one it’s getting to know people on a very human level that’s that’s just like we’re two human beings together we can play together without really knowing each other on that verbal level so are you are you able to achieve that online now have you been doing that it’s more challenging somewhat more challenging but i’m amazed that we’re able to it does work for a lot of people and it we’re still able to do it yeah so i’m very grateful for that for everybody some people in my group don’t come to the zoom and then some people never come before and hop down and and love it on zoom so you know i can’t say you know it obviously is not for everybody but i’d say it works for a lot of people i mean everybody should try it you know no harm done no no no i don’t know anybody who’s died from laughing

    that’s a good testimonial

    and most people come out of it saying they feel both more relaxed and more energized yeah nice combination yeah no i definitely did feel more energized i mean because you are really exercising your lungs and the one i did online we were moving around a little you know so yeah it is uh oh yeah a lot of movement moving clapping um breathing a lot of yogic breathing and of course laughter and i also do uh when we have a we so we do these playful after exercises we get people to connect and laugh with each other and we also do um some warm-ups before that some physical warm-ups and towards the end we do a time when we just laugh for a minute or two because you really get more benefit out of a more extended lab more health benefit helps with the blood pressure helps with the immune system which we really need right now right yeah

    and as a natural pain reliever which is lovely and then uh at the towards the end i do a guided or eliza or i do a guided relaxation because it’s in the evening and we want to leave people in a peaceful place oh yeah that makes sense right you’re unwinding and gonna go to sleep soon so you want to come down a bit

    great well thank you so much oh you’re very welcome my pleasure yeah i feel like i haven’t bumped into you somewhere since kaiser yeah i think we did but i don’t remember where that’s another way i use laughter is because it helps my dog my memory when i forget something i laugh and it’s amazing because it kind of it cuts through the brain freeze and i can think better and i almost always remember it what it was i was forgot wow i recommend trying them oh man can you jar that that’d be good wouldn’t it yes you’d get an arp magazine you know you’d make a fortune

    hey guess what you too can experience laughter yoga with annie she has a groupon meetup i’ve provided the link in the podcast notes on the glasses website and if you’d enjoyed if you’ve enjoyed what you’ve heard in this episode i invite you to check out the other links on the glass apple website that are related to laughter therapy there’s an organization called comedy cures foundation that provides therapy therapeutic comedy programs for children and adults living with illness trauma depression and disabilities there’s the association for applied and therapeutic humor which is was founded by a registered nurse in the sev in the 80s 1980s meta organization provides and disseminates information about therapeutic humor and there are also links to the ucsf laughter yoga program and dr kitarya’s website so take care of yourself as best you can and when you’re ready consider exploring how some intentional laughter can help ease your stress thank you for listening to glass half full leslie invites you to leave a rating and review on itunes this helps spread the word to others dealing with chronic health issues for show notes updates and more visit the website glass half full dot online.online

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