February 28th is Rare Disease Day. Twenty-five to 30 million Americans live with a rare disease. For more facts and figures related to rare diseases, check the NORD website. This podcast episode catches up with…
Traditionally the month of October is the time to become aware of people with disabilities — either a visible or invisible disability — but here we’re drawing attention to all those who face physical and…
Featured are four people — with their own unique health conditions — that are coping and making the best of the quarantine and pandemic. Luda Gogolushko, who has SMA Type 3 and lives in Southern…
It’s not that easy being RARE…
- February 27, 2019
- Tagged as: advocacy, myotonic dystrophy, rare disease, research
February 28 is International Rare Disease Day. There are over 6,000 rare diseases or disorders with 80% having genetic origins. Global events are planned to draw attention to the need for medical research. This brief,…
