Glass Half Full with Leslie Krongold, Ed.D.

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Tag: clinical trials

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Rare Disease and the Need for Research

  • February 27, 2018
  • Tagged as: clinical trials, drug treatment, myotonic dystrophy, research, scoliosis, spinal fusion, Spinal Muscle Atrophy
People advocating for rare disease

February 28th is Rare Disease Day. This year’s theme is: Research. How can we support research efforts for our rare disease? We can donate to our patient advocacy organizations that spearhead research efforts. And we,…

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Leslie

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