Over the past month there’s been some chatting — with a Professional Patient and a few virtual friends sharing how they cope with the holidays. I noticed a Facebook posting from a high school classmate…
When to stop driving a moving vehicle? That is the question to ponder; is it a toss up between being a responsible adult or maintaining a sense of independence? For many people, this is a…
Apparently last year, and the year before, I didn’t blog or do a podcast episode relevant to Thanksgiving. I want to make up for that…because…I am grateful for a lot! I often express gratitude in…
September 15th is International Myotonic Dystrophy Awareness Day. To learn more about helping educate and advocate for Myotonic Dystrophy visit the Muscular Dystrophy Association or Myotonic Dystrophy Foundation. The purpose of International Myotonic Dystrophy Awareness…
Don’t Laugh At Me – I know how it feels
- August 29, 2022
- Tagged as: bullying, disability, diversity, equality, musiic, songwriting
The lyrics to Don’t Laugh at Me speak to anyone who has felt like an outsider. Whether or not you were bullied as a child, this song will likely resonate with you. Steve Seskin, the…
Uncover the stronger part of yourself…
- July 21, 2022
- Tagged as: coping, movement, Pilates, rehabilitation, spinal cord injury
Liz Ann Kurdrna, Pilates instructor, feels like her emotional recovery from a rock climbing injury is ongoing yet “knowing that I have to show up for someone else…by teaching…it helps. It helps you uncover the…
Glenn Ribotsky, a Board member with the Western Neuropathy Association, shares his dramatic initiation as a patient into the world of peripheral neuropathy. Now, 18 years later he advocates and offers support to others experiencing…
Maybe you were part of last year’s inaugural May Movement Challenge? Here’s a video showing the highlights from a month-long array of free, accessible online movement classes. This year we have several of the same…
Dr. William Lowery, a practicing pulmonologist at Alameda Hospital in Northern California, was diagnosed with Limb-Girdle muscular dystrophy some 20 years ago. He’s now founded a non-profit organization to help others shorten their diagnostic odyssey…
“Don’t worry, be happy! It could be worse. It is what it is.” by Toxic Positivity
- December 28, 2021
- Tagged as: caregiving, compassion, coping, support groups, tosic positivity
I remember years ago when I had a Toyota there was a dealership I’d go to regularly for oil changes and other car repair. You know how you drive into a big open space, like…
