My neurologist recently confessed that what he does for people with my disease is really palliative care, which, according to Wikipedia, “focuses on providing people with relief from the symptoms, pain, physical stress, and mental stress of the terminal diagnosis. The…
My first Sound Bath experience was a couple of years ago. It was in a medium-sized yoga studio. The sound musician/artist/yoga therapist used gongs and crystal bowls. I was seated close to her set-up and…
I’m not shy. Well, sometimes I am but if I/we win this WEGO Health Award, there won’t be any shyness. I’ll appreciate a few seconds in the limelight but mostly I’ll look at this award…
At the recent Patient Advocacy Conference I attended, I spoke with a community member. We’ve previously met but I’ve talked more with his family members. He’s always seemed to be rather shy. He asked me…
According to Wikipedia, a patient advocacy organization is, “an area of specialization in health care concerned with advocacy for patients, survivors, and carers. The patient advocate may be an individual or an organization, often, though not always, concerned with one specific…
I have a friend who is clinically depressed. I know little about depression though I realize whatever I went through in my mid-20s was more episodic and temporary and nothing like what my friend experiences….
Is it the Indian Summer or what? The past two days have been scorchers in San Francisco and the East Bay. I watched with utter disbelief as my Facebook feed filled with images of iPhone…
This month of September is designated as National Preparedness Month. It’s the topic of discussion in the most recent podcast episode and, apparently, in this first of a nearly daily blog post. So, how prepared…
When I was diagnosed with myotonic dystrophy I don’t remember hesitating before making my way to a support group meeting. I didn’t have preconceptions; all I wanted to do was meet others with the condition….
Declaring oneself disabled doesn’t have to be all bad. Once you accept having limited abilities and turn your focus on what you can still do – which is often a lot – you might be…