Glass Half Full with Leslie Krongold, Ed.D.

Tag: patient leader

  • Patient Advocates, Patient Leaders

    • Andrea Klein
      Andrea L. Klein
    • Melissa Talwar & Leslie Krongold
      Melissa Talwar

    What is a Patient Advocate? A patient advocate can be an actual patient with a mental and/or physical health condition, a caregiver for someone with a health condition, or a paid professional advocating on behalf of others with a health condition.

    Andrea L. Klein, of Cleveland, Tennessee, has collagen six intermediate congenital muscular dystrophy. She started a Facebook group, Breathe with MD Support Group, for people with a neuromuscular disease who struggle with respiratory health. Recently, she established a nonprofit organization with the same name.

    Melissa Talwar, of Pasadena, California, has struggled with fibromyalgia since she was 14 years old. Her experiences with different medications and their alarming side effects catapulted her into focused research on the condition and potential treatments. After volunteering with a patient advocacy organization and then traveling around the U.S. to meet others with fibromyalgia, Melissa also established a nonprofit organization.

  • Finalist for Best of Show: Podcast

    I’m not shy. Well, sometimes I am but if I/we win this WEGO Health Award, there won’t be any shyness. I’ll appreciate a few seconds in the limelight but mostly I’ll look at this award — any award — as a way to reach more people out there. Because I’ve got a message and I don’t want to keep it to myself.

    What’s my message?

     

    The pithy message is — you can live a life filled with quality and dignity in spite of having a diagnosis. At least that’s how I’m trying to live my life post-diagnosis.

    Over the years I’ve explored so many avenues learning about ways to increase my health and vitality. I’ve learned a lot. I’ve gathered a lot of tools and resources. I’ve developed a few practices and some routines worked for awhile until they no longer served me while others did not resonate for me. But I continue to maintain an open heart and mind.

    While I feel pretty blessed to live in the San Francisco Bay Area where there are at least two excellent medical schools and many, many talented alternative health care practitioners, I realize not everyone has this access.

    My hope is that with each podcast episode you’ll be able to take something away to help you on your health journey — your mental, emotional, and physical health journey. If you find something that sparks your interest, go deeper to explore it. I’ve heard of many people that have learned a new practice by watching YouTube videos.

    If you know what you want to learn more about, take a look at the word cloud (tags) on this web page. If you don’t see what you want, let me know. You can send me a message (Leslie at GlassHalfFull dot online) or on the Facebook page.