Tag: fatigue

  • I wanted to help people prevent chronic disease…

    Dalia Kinsey, RD, LD, SNS, chose to be a dietician because she wanted to help people prevent chronic disease; this was before receiving a diagnosis of Graves Disease, an autoimmune disorder that causes an overactive thyroid.

    Dalia Kinsey

    In this first of a two-part interview, Dalia shares anecdotes of dealing with a chronic health condition in another country where certain modern conveniences, like continuous running water, are lacking.

    Her lived experience and academic training have shown her that many people make the false correlation between weight and health. Dalia believes,

    Health is not just determined by one or two factors. Eating is such a social thing and feeling connected to others and happy and not judging yourself when you’re eating, I think also plays a major part as to how your body relates to those calories. And it affects digestion, how you feel about your food, that I think it’s important not to have any strict food rules, but the basics that we all know from our mom or grandma from whenever is that you should eat vegetables and you should eat fruit and you should really, really eat vegetables.

    As a healthcare practitioner Dalia views her role is “to be a facilitator and there for whatever the patient wants, not to be like this parental figure telling anyone what to do because you know better.”

    Here’s part 2 of our conversation.

    If you want to hear another healthcare professional speak about her journey as a physician diagnosed with autoimmune disorders, listen to this previous podcast episode.

  • Patient Advocates, Patient Leaders

    What is a Patient Advocate? A patient advocate can be an actual patient with a mental and/or physical health condition, a caregiver for someone with a health condition, or a paid professional advocating on behalf of others with a health condition.

    Andrea L. Klein, of Cleveland, Tennessee, has collagen six intermediate congenital muscular dystrophy. She started a Facebook group, Breathe with MD Support Group, for people with a neuromuscular disease who struggle with respiratory health. Recently, she established a nonprofit organization with the same name.

    Melissa Talwar, of Pasadena, California, has struggled with fibromyalgia since she was 14 years old. Her experiences with different medications and their alarming side effects catapulted her into focused research on the condition and potential treatments. After volunteering with a patient advocacy organization and then traveling around the U.S. to meet others with fibromyalgia, Melissa also established a nonprofit organization.

  • Autoimmune Illness: A Physician’s Journey

    Autoimmune Illness: A Physician’s Journey

    Imagine if your physician not only understood your invisible chronic illness but also had experience healing her own autoimmune illness. That physician could be Cynthia Li.

    Dr. Cynthia Li talks about her book, Brave New Medicine, and answers my questions covering everything from autoimmune illness, functional vs. integrative medicine, the writing process, to the role intuition played in her healing process and now plays a role in her medical practice.

    Dr. Li mentions the organization, HeartMath Institute, in this episode. To read Dr. Li’s 2014 (pre-Brave New Medicine publication) contribution to the San Francisco Medicine Journal, check page 19.

  • Self-Care Challenge: Avoid Fatigue

    So, what is fatigue? It’s not a fancy word. Most of us probably think it’s synonymous with being tired. But, is it?

    Wikipedia’s entry for fatigue includes:

    Fatigue is a subjective feeling of tiredness that has a gradual onset. Unlike weakness, fatigue can be alleviated by periods of rest. Fatigue can have physical or mental causes. Physical fatigue is the transient inability of a muscle to maintain optimal physical performance, and is made more severe by intense physical exercise. Mental fatigue is a transient decrease in maximal cognitive performance resulting from prolonged periods of cognitive activity. It can manifest as somnolence, lethargy, or directed attention fatigue.

    There were frequent times when I felt like I had a good night’s sleep but I would experience sudden fatigue during the day. It didn’t make sense until I started paying attention to when the fatigue would appear. It took awhile before I fully understood a pattern and started to have more control over the bouts of fatigue.

    Aside from doing my best nightly sleep hygiene, I changed my diet to smaller, more frequent meals. My body can’t handle larger meals nor certain types of food. Once I made these dietary changes, my bouts of fatigue became less frequent.

    If you’re using the Health Storylines app, you might want to explore the Fatigue Manager tool to help you track and identify the cause of your fatigue.

    Fatigue Manager Tool in Health StoryLines app
  • Stories of Healing with Essential Oils

    Stories of Healing with Essential Oils

    This episode features personal stories about how the use of essential oils has helped with a variety of conditions including depression, anxiety, fibromyalgia, fatigue, post-surgical pain and post cancer treatment.

    If you’re interested in deepening your exploration of essential oils, please leave me a note here.

    For information about Dr. Kris Gast’s medical practice you can visit her radiation oncology website or Beauty through Health website.

    To learn more about Lori Melero’s alternative care practice, visit her website.

    Loose Transcription

    It’s hot this week – in northern California – and heat is a trigger for me. It exacerbates my symptoms. Oddly enough, most people I know with my condition – myotonic dystrophy – tend to feel better in the heat and have problems with the cold. Give me the cold any day. We have the air conditioning turned up right now and I’m using a variety of tools to help me through it. And one of those tools is natural essential oils. Peppermint is a good one to help with a little cooling.

    Using essential oils isn’t necessarily a new tool for me but as I learn more about various oils and how they can help with my physical and emotional well-being, they’re becoming a more helpful and necessary tool.

    So this episode is all about essential oils. I wanted to share personal stories rather than a bunch of factoids about essential oils.

    Actually, he used to say…we have a really BIG show for you tonight…but I couldn’t find that sound bite. But…we do have a REALLY BIG show for you. Stories about how using essential oils have helped for a variety of conditions including depression, fibromyalgia, post-surgical pain and post cancer treatment.

    First let me share my story. I remember buying essential oils at the health food store when I was young. I bought them for the fragrance…I loved jasmine, patchouli, musk. It wasn’t until years later when I realized there were differences in the quality of the essential oil. So many of them have additional chemicals added and weren’t a pure therapeutic grade quality oil.

    My first experience with a therapeutic grade essential oil was…lavender. I’ve been carrying around a lavender roll-on with me for at least 10 or so years. I use it every night as part of my sleep hygiene routine but I also use it to fight a bout of anxiety during the day.

    About two years ago I met Valerie Jew — an Urban Zen integrative healing practitioner featured in an earlier podcast – she introduced me to other essential oils. I’ve been gradually exploring them since and learning about their healing qualities. There is a lot to learn. I’m using oils in a variety of ways – rubbing on my feet, diffusing them in the air, and occasionally using them in foods and beverages. They’re a great addition to my nightly bath ritual.

    Just this month I began a year-long program that culminates with a certification as an essential oils wellness practitioner. But, I digress…I’ll tell you more about this after you hear a few personal stories.

    The first guest is Mindy Kim – Mindy was in this year’s first podcast episode when I asked people to share their New Year’s resolutions. Mindy lives with her family in North Carolina and she also has myotonic dystrophy. Exploring the use of essential oils was one of her goals for the new year.

    Mindy I bought my oils and I’m ready to start using them. I hope it will be a healthier year in general.

    Back in April Mindy and I spoke again and she shared how her health goals were progressing.

    Mindy I ordered the DDR prime oil. I roll it on my feet. I love it. I can’t pinpoint it. it makes me feel like I’m doing something good for my body. I ask about other oils she’s tried. In the book it mentions basil but I haven’t used it yet. I like the idea that I’m doing something positive for my body. I don’t have to use it every day with a meal like medications. It feels good on my feet. I like the idea that it’s ancient since before Jesus’ time. I’m very happy with my oils.

    The oil Mindy mentioned is considered a supplement. I’ve been applying it to my feet every morning for the last couple of months and I, too, feel like it’s a positive experience. It apparently works on cellular energy and it’s been helping with my daily fatigue. Plus, I appreciate the morning ritual of oiling the bottoms of my feet.

    Previously I mentioned Valerie Jew who turned me on to oils beyond my lavender. Her daughter, Laura, is my next guest. Laura began exploring essential oils as a child.

    Laura My earliest memory when I was 10 and my mom and my brother went to Bali for a yoga retreat. There were so many mosquitoes. My aunt took out lavender EO, rub it on our palms…it took mosquitoes away. It wasn’t associated with my use of them emotionally. In the program Urban Zen an integrative…one of the modalities. I got introduced into the spectrum…it’s been an all-around journey.
    Laura So, one part of my story is that I have chronic depression. I’ve had it since adolescence. At that point see a therapist, get on anti-depressants. For year – I’m almost 30 – it was fatalistic view…your mental health is up to some foreign expert and taking drugs. My epiphany came when I was in the UZ program – along with restorative yoga I started noticing I felt more grounded. A happy accident – I forgot to take my anti-depressants one day. I stopped taking pills and did oils, meditation, yoga…I had my ups and downs…I learned a sense of empowerment. I’ll start with citrus oils in the morning. I’ll bring 2-3 oils with me for the day. I’m more in tune with my body. I’m feeling my energy drop a little bit, I’ll take peppermint. It has fostered this amazing connectivity between my physical self and my spiritual self and my mental self.
    Laura One of the first things I do is take a shower I put oils in the bottom of the shower. It creates a steam…I mention the shower mister…usually I put peppermint on the back of my neck or on my palms I’ll inhale. I will take peppermint oil with a full glass of water. I’ll use cedar wood, vetiver…floral oils are calming. Lavender or clary sage. I mention so many…geranium is another favorite.
    Cinnamon is one of my favorites for the winter. My body wants something different. She’s completely off anti-depressants. I say “that’s very powerful”

    Laura’s story is very inspirational. I’d love to hear from other people that have had a similar experience of transitioning off pharmaceuticals but the friends I know who are either diagnosed with clinical depression or bipolar disorder have quite adamantly told me they the drugs they’re on and it would be frightening to stray from the routine that now works for them.

    I wonder how doctors would respond to this switch from pharmaceuticals to the use of essential oils? There are medical doctors exploring the application of essential oils in their practice. I recently met one – well – virtually met – Dr. Kris Gast. Remember I said I’m studying essential oils; the course I’m taking has an online classroom component and I saw Kris’ post about implementing essential oils in her medical practice so I jumped at the opportunity to speak with her. Her medical practice is in Fort Smith, Arkansas which is on the border of Arkansas and Oklahoma.

    Kris I originally started in medicine in the 80s – radiation oncology – a lot of computers, big linear accelerators…at this point people retire…I have so many patients have followed and see them once/year. I have a huge population…2/3 to 75% cancer patients survive. It’s part of the practice to make them happier and healthier in their lives. It’s been driven by their patients to expand the practice to have other tools.
    Kris A lot of our patients will go through chemotherapy or placed on hormone pills and all of that causes health issues. They always gain weight. I searched for diets. Not just a cancer provider to make sure their other health issues are…I asked about implementing EO. We started using the recipe for insomnia. One menopause recipe. I’m in the process of doing this right now. it gives them an alternative to adding another pill to their ever-growing pile. Old now is like 85. They’ll be like on 20 meds. We get them detoxed and out there doing what they like to do.
    Kris I ask how receptive they’ve been. Most of these people in our practice they’re pretty much rural; they have land, grow gardens. They have a history in their family that may date back Indian blood…they used to use this concoction. Our location…Irish and Choctaw and Cherokee Indians. They like natural.
    Kris It’s so much fun; it’s helped me be able to say I can practice for another 20-30 years. My staff is so good for our patients…we’ll all take it. anything give a patient I’ve tried it on myself. It helps us understand that something really works.
    Kris

    Kris

    I think that most doctors do not come to their full potential until they’ve been a patient. I’ve had a chronic illness for 20 years – fibromyalgia – and it’s been a struggle to find anything that helps. I ask about EO for fibro. The first thing that has helped the most was to keep moving…the movement was the only relief. One of my employees encouraged me to become gluten free. Now I look at food to see not how it will taste but what will it make me feel like. The EO for myself to help me sleep better…my recipe is frankincense and lavender. I can sleep 5-6 hours straight. I rub it on my hands and on the back of my neck before I go to bed.

    Until doctors get sick and have to take pills, I don’ think they’ll be very receptive to it…

    Wouldn’t you want Kris as part of your medical team? We can all hope for a future when doctors will be open and receptive to alternative modes of healing.

    The final essential oil story I have for you today is also part of that cross-section of natural healing and western medicine. Lori Melero has been a massage therapist and wellness coach for 20 years. I knew Lori from a local qigong class and had heard through a mutual friend that she recently used essential oils to recover from a rather dramatic surgery.

    Lori My earliest experience with oils was in 1997 when I did massage therapy. In 2014, someone introduced me to doTerra. In 2014 I got reintroduced to them. I stopped using oils and they had synthetics and I was allergic. I ask if she did it for the aroma; she was. She didn’t know about the healing benefits. Lavender, eucalyptus, peppermint. A yoga instructor offered a massage with her oils. Aroma Touch session. My body completely opened like a flower. It was like a cleanse.

    Once reacquainted with therapeutic grade essential oils, Lori used different blends for allergies, digestive issues and created a lotion with frankincense which helped her with inflammation and a hematoma from a fall.

    Lori Back in 2010 I had a gall bladder attack. I went to doctor and advised I get the gall bladder removed. The stone was 2 millimeters. Drink olive oil and lemon juice. I passed the stone. I changed my diet. I was great for 6 years. I ate an egg and cheese experienced with pain. Rushed to the ER. They did tests and I had a 7-millimeter stone. After the procedure, they put a scope down the throat…I became septic. They had to consult with surgeons. They waited a few days to see if would heal. I came out of it and…my white blood cell count was going up. I had a blood transfusion. Another major surgery – clamped my stomach…I don’t remember a lot because they had me on a lot of medication. I asked for my diffuser and lavender. I was in the hospital for 11 days. Once I came home they offered me Norco for pain. My husband had to say, “she said no.” I took Advil for 1-2 weeks. I used frankincense and DigestZen. I put it on the bottoms of my feet. I was in bed for some time. I had feeding tubes…
    You used the diffuser…my oils next to me. I would pick which one was suitable for me. Whatever one resonated for me at the time is what I used.
    Lori I’m doing great; at least 90%

    So…now I ask you…are essential oils part of your tool chest? If not, and you’d like to learn more, please contact me via the Glass Half Full website or the Glass Half Full Facebook group. I’ve embarked on diving deeper into my knowledge of essential oils and will soon be starting a side project for those that would like to join me.

    Future podcast episodes may touch upon essential oils but I’ll continue to mix things up. After all, it’s good to have a lot of tools available.

  • Multiple Sclerosis & John Muir’s Great-Grandson

    Diagnosed with MS as a teenager, Michael Muir spreads his “fun is therapeutic” philosophy while making the horse ranch experience accessible to everyone.

    To learn more about Michael’s organization visit the Access Adventure website.

    If you’d like to know more about hippotherapy you can listen to this panel session at the 2014 Myotonic Dystrophy Foundation Conference.