Glenn Ribotsky, a Board member with the Western Neuropathy Association, shares his dramatic initiation as a patient into the world of peripheral neuropathy. Now, 18 years later he advocates and offers support to others experiencing…
Maybe you were part of last year’s inaugural May Movement Challenge? Here’s a video showing the highlights from a month-long array of free, accessible online movement classes. This year we have several of the same…
Dr. William Lowery, a practicing pulmonologist at Alameda Hospital in Northern California, was diagnosed with Limb-Girdle muscular dystrophy some 20 years ago. He’s now founded a non-profit organization to help others shorten their diagnostic odyssey…
“Don’t worry, be happy! It could be worse. It is what it is.” by Toxic Positivity
- December 28, 2021
- Tagged as: caregiving, compassion, coping, support groups, tosic positivity
I remember years ago when I had a Toyota there was a dealership I’d go to regularly for oil changes and other car repair. You know how you drive into a big open space, like…
The size of a grapefruit in your head; I’m grateful that I’m still here
- December 11, 2021
- Tagged as: brain, meningioma, thyroid diswase, traumatic brain surgery, tumor
When you’re told you have a tumor the size of a grapefruit growing in your brain, and you have it removed, and you live to tell the story about it without experiencing profound disability, then…
Traditionally the month of October is the time to become aware of people with disabilities — either a visible or invisible disability — but here we’re drawing attention to all those who face physical and…
What is that growing on me — could it be skin cancer? Have you asked yourself this question? During the pandemic I ignored a couple of what I thought were pimples because I was terrified…
An Unusual Fall
- October 4, 2021
- Tagged as: balance, fall, fall prevention, flexibility, movement, Pilates, yoga
Falls don’t always happen when you’re standing. Although balance and fall prevention classes help increase your odds of preventing a near fall, some falls are just unusual accidents. Like sitting in a chair where the…
Rock Climbing & Acquired Disability Peer Support Group
- September 26, 2021
- Tagged as: acquired disability, disability, movement, paraclimbing, stroke, support groups
Christina Leffmann, or Roma as she prefers to be called, is passionate about indoor and outdoor rock climbing as well as the Acquired Disability Peer Support Group she started. In June Roma traveled to Salt…
Transitioning: Mobility Challenges + Nature = Next Chapter
- September 17, 2021
- Tagged as: accessibility, mobility, nature, neuromuscular disease, pandemic, stress
The Pandemic has brought many changes; for me, it’s ushered in the next chapter of my life. Perhaps the final chapter? With mobility challenges, it was one of two choices: home modifications or move to…
