I can’t believe it’s been four months since my last post.
May was a big month – filled with the May Movement Challenge. Nearly every day of the month there was at least one – and in many cases multiple – free, accessible, online movement classes. It was amazing! If you missed it, here are some highlights.
Highlights from May Movement Challenge 2021
Each Saturday we had a virtual pow-wow complete with a stretch session, an instructor teaching about an aspect of a movement practice, and someone sharing about their personal journey with movement. I am tremendously grateful to all of the movement instructors who volunteered to teach. Special thanks to those who donated prizes for the weekly Give-Away (Lockdown Comedy ticket, Month of Chair Yoga classes, Life Coaching Session, Magazine Subscription to Spirituality & Health, and a wonderful grand prize of Daily Harvest organic, plant-based meals.)
Daily Harvest has extended their discount offer. Use the code GLASSHALFFULL to get your discount.
Over 200 people registered for the inaugural event. We have a Facebook group for those who would like to continue their movement practice challenge.
So where was I during the months of June through August?
As President Biden might say, “Here’s the deal…” It’s one of those pandemic stories. I did a good job with quarantine. My partner and I masked, socially distanced, didn’t go inside buildings other than our home, and saw very few people in person. I became a Zoom pro. I amped up my exercise routine and took daily walks.
During one of our daily walks my partner and I discussed my changing needs. Although I remain ambulatory, walking presents challenges. Especially when stairs are involved. We live(d) in an old Tudor house with my office and the bedroom on the second floor. I was incredibly mindful when going up and down the stairs. It was exhausting.
So, on one of these walks, I said “let’s move.”
There was always the option of renovating our home to make it more accessible but I really didn’t want to disrupt the architectural integrity of the house. It served us well for nearly 20 years. Plus, the COVID-19 experience had an impact on my values. Nature is so important to my physical and emotional health. I wanted more of it.
If ever I was asked about my “bucket” list, all I could ever say was to wake up in the morning and see the ocean. Without going into the long story, I got my wish. We moved from Alameda to Mendocino, California. Ironically, in 2018 I wrote a blog post for Brain + Life about my love of Mendocino. At that time I couldn’t imagine moving to the country. With a chronic health condition? Don’t I need access to neurologists, cardiologists, pulmonologists?
I don’t know. I never needed to see a doctor during the first year and a half of the pandemic. My healthy lifestyle has enabled me to continue to lead a quality-filled life. My hope is that I’ve now enhanced that healthy lifestyle. The air is fresher, there’s an ocean breeze, and everything is just slowed down. So far, this household of two humans and five cats are enjoying it.
And I’m back with the Glass Half Full! Stay tuned for two new podcast episodes before the end of September.
She’s also an old friend from my college days. We reminisce about way back when…as well as hear about Susan’s unfortunate experience at a New York medical clinic where she was told, “You’re over 40, it’s a cyst. Take aspirin.” The tumor grew.
Susan’s diagnosis and treatment led her to make life changes. She became one of the 48 teachers in Manhattan working directly with medically-challenged students; 80% of them undergoing chemotherapy.
Eventually, she wrote and starred in her one-woman show, Teacher in the House. While her performance schedule is impacted due to COVID, you can enjoy her dancing and character sketches on Tik Tok.
For additional podcast episodes with breast cancer survivors, visit this page.
Featured are four people — with their own unique health conditions — that are coping and making the best of the quarantine and pandemic.
Luda Gogolushko, who has SMA Type 3 and lives in Southern California, continues to write and publish from the safety of her home.
Lindsey Kizer, in North Carolina, gets to telecommute for her job and tries to maintain self-care routines to avoid narcoleptic flare ups.
Jay Carr, with myotonic dystrophy in Virginia, spends more time with his teenage son during the lockdown. He also cheers others with his humorous Facebook posts and musical interludes.
Peter Slobodnik, outside of Sacramento, keeps himself busy by making masks for friends and family while also planning an advocacy bike ride to draw attention to his rare disease, Hereditary Spastic Paraplegia.
Each of these podcast guests has found their own way to cope with the pandemic.
People with anxiety, autism, blindness or low vision, deaf and hard of hearing, mobility challenges, chemical sensitivities, or PTSD may face unique challenges visiting a dental office. Now with the additional barrier — the COVID-19 pandemic — many people are postponing or cancelling routine dental appointments.
Dr. Helena Caballero, a dentist in Northern California, discusses oral health and hygiene, how COVID-19 has changed dentistry, and modifications for people with disabilities.
For additional information, you can download Creating Disability Friendly Dental Practices from The Independence Center. For those with Parkinson’s Disease, additional information is provided to maintain dental health. For those with neurological disorders, there is an article, “Dental Visits Made Easier” offering helpful tips.
Here is an article that discusses the little dental coverage that Medicare offers.
That is me; I still have my hands, says the 4-year old girl after waking up in the hospital and being told by her mother that she had lost her legs. The little girl grew up to become Rumba with Tina. Tina Verduzco teaches a Saturday morning online dance class for BORP: Bay Area Outreach & Recreation Program.
Tina Verduzco, Cynthia Noonan & Freckle, Younger Tina
Tina, along with several other online instructors, help this podcaster maintain positive energy and a healthy mind, body, and spirit during the shelter-in-place period.
Cynthia Noonan, one of BORP’s Board of Directors, transitioned the in-person fitness studio in Berkeley, California to the virtual world where participants join in from across the United States and Mexico.
We’re not talking about your financial investments. How much of a health risk are you willing to take during the current pandemic? Do you wear a facial mask when you leave your home? Do you maintain six feet of physical distance from people who do not live with you? Are you avoiding crowds? Postponing health appointments?
As our cities and towns gradually open up, will you change your behaviors or wait for a reliable vaccine?
Transcript
Welcome to a science fiction movie. I can’t be the only one taunted by images from movies like The Andromeda Strain. Maybe you’re not familiar with that movie? I saw it in my youth – when I was most impressionable – and I often think about it. But more for its metaphoric value, not literally. I won’t delve into the plot; you can check it out online…somewhere. I wanted to share other movie references so I googled “movies about viruses” and it auto-filled…so, I know we’re all in this together. Suffice it to say, yesterday someone wrote an article, “The best movies about disease outbreaks.” Sure enough, The Andromeda Strain is on the list. This is not a film genre I’m fond of but I have seen several others on her list.
A few days ago I went to purchase N95 face masks on Amazon and I realized many resellers jacked up the prices…today I checked Purell sanitizer and the pricing is insane. I believe there is a special place in hell reserved for people who try to profit from those with illness, disability, and vulnerability.
Are we taking it to an extreme? If,, for some reason you haven’t guessed…I’m talking about the coronavirus or what is now being called Covid-19. Is that a character in the new Star Wars movie?
I wrote a short blog post a few days ago called Hand Washing – which is what everyone is talking about. It’s bigger than the Macarena. Do you wonder as you’re washing your hands…am I doing this right? Geez, maybe you have a college degree? Or you operate heavy machinery? Or you guess correctly for 90% of Jeopardy questions? Sure, a little soap, rubbing vigorously under water, move your fingers between the fingers on the hand…sing Happy Birthday twice if you want. I think most of us have mastered the task of hand washing. What else? Give me more practical advice…you think to yourself? Or, at least I do.
So…right now there are no travel restrictions within the United States yet I see plenty of signs that life is changing dramatically. I saw a post from someone who works for Microsoft in Washington state; he received a company email advising employees to work from their own home for the month of March. Today I heard Amazon and Facebook are doing the same.
In a Facebook group for people with my disease, someone in Australia posted that people are stock piling toilet paper, hand sanitizer, bottled water, dry goods. Apparently a woman at a Sydney grocery market pulled out a knife over not being able to get toilet paper; the shelves were empty.
I’m not going to attempt to deliver any facts about the virus. Every other email I receive has something to do with it whether it’s from a health organization, a retail company, or a politician. I think the best source is the CDC website – that’s the Center for Disease Control – which is updating the information daily. Anything you read on Facebook or hear through friends should be taken as anecdotal. Like I just shared two Facebook stories with you – Microsoft and Australian supermarket. I assume they’re the truth but I won’t rely on it. Anyhow, they have nothing to do with what you’re most concerned about.
I think Trevor Noah on The Daily Show knows what we’re most concerned about. Their new nightly segment is called “Is this how we die?” I have a link to it on the Glass Half Full website. Anyhow, isn’t that what you’re thinking? I am! Sure, it’s morbid and totally depressing…but…having a chronic health condition with respiratory weakness…come on!? I’d have to be a fool not to take this stuff seriously.
The other day I went to lunch with a few yoga friends. Of the 9 or 10 of us gathered, most are in fine health. One woman is in her 70s and has a blood cancer which she receives treatment for. She told us that another woman – let’s call her K — wouldn’t be joining us. K is a world traveler, had just returned from India a few days before, and told a few people that she had a cough. As we were settling in with our food, K showed up claiming she had been given a clean bill of health after seeing a doctor and receiving a diagnosis of bronchitis.
Before K showed up, our conversation had already been focused on the coronavirus. One woman brought a big container of Clorox antiseptic wipes which we all used. We shared little tidbits of what we knew. One woman told us her daughter – who lives in another state — is worried about her because she’s in her 60s. As far as I know, she’s healthy. Only two of us at the restaurant had chronic health conditions. Did K think about us when she joined us? Even with a case of bronchitis it’s probably not wise for her to be out and about in public.
Perhaps unbeknownst to K, we struggled to make room for her at the table… at the far end of the table, away from the woman undergoing cancer treatment and myself. Everyone was polite but I could almost see the thought bubbles bouncing about.
Before our lunch gathering I debated whether to attend. I enjoy these women and only see them once each month now that I no longer attend the same yoga class. I knew K had been on an international trip but I wasn’t aware of her health status.
This virus presents many social obstacles. Do I stay at home to avoid contact with the general public? Do I attend my regular exercise classes and occasional lunches with friends? Do I partake in larger, public gatherings for music, performance, or even a sound bath meditation which attracts 100s in a facility such as a church? Do I continue to have my monthly book club welcoming 10 or more people into my home for a few hours of food, fun, and discussion? Do I hug friends when I see them at my home or out in public?
Here’s a term I was not familiar with – social distancing. According to Wikipedia,
Social distancing is applied to certain nonpharmaceutical infection control actions that are taken by public health officials to stop or slow down the spread of a highly contagious disease. The objective of social distancing is to reduce the probability of contact between persons carrying an infection, and others who are not infected, so as to minimize disease transmission, morbidity and ultimately, mortality.
Social distancing is most effective when the infection can be transmitted via droplet contact (coughing or sneezing); direct physical contact, including sexual contact; indirect physical contact (e.g. by touching a contaminated surface); or airborne transmission (if the microorganism can survive in the air for long periods).
I saw a Facebook post promoting the use of jazz hands to greet people. This may be a joke…but…consider alternatives to hugging. I am.
To what extent we change our habits, our rituals is really up to the individual. If you listen to a recent podcast episode, The Flu is Not for You: how to build immunity, my interview with a physician reviews general helpful practices to avoid contracting the flu and other airborne viruses. Washing your hands is one step but the other key behavior is to avoid touching your mouth, nose, and eyes. It’s hard but I know you can do it.
As far as limiting my exposure, I am now avoiding places where large groups gather and space between others can be…cramped. Right now my places of exercise do not fall into that self-determined barrier. And when I see friends, I’m not hugging. Thankfully I have no travel planned until May which involves air travel. It’s a rare disease conference so I’ll wait to see if it’s still scheduled as the date approaches.
This weekend is my birthday and in recent years my partner and I go away for a couple of days. Our local venture will be to Santa Cruz; I have made hotel arrangements and purchased tickets for a steam train ride; it’s open air and a short trip. We will go to restaurants but most of the time we’ll be outside at the beach or a local redwood forest. There is one indoor activity I want to do and I’ll investigate when it’s the least crowded. There’s some app available for that. anyhow, it’s Skee Ball at the Santa Cruz pier. I’ve loved playing skee ball since I was a kid…especially with the wooden balls. I promise to bring copious amounts of hand sanitizer.
I’ve debated whether or not to cancel this trip. At this point, most of our infrastructure remains the same. Schools are open. Domestic flights are happening. Restaurants have regular hours though I’ve heard many Chinese restaurants have fewer diners…which is really sad to hear. I mean, this virus is all over the world. Have people stopped eating pizza because Italy is shut down.
I’ve decided the trip is still on and I will be mindful of where I go, what I touch, and I will maintain my social distance, especially if I hear coughing or sneezing. I already do that.
We can live in fear every day for all types of situations that are beyond our control. I live in California and for the past 30 years I’ve heard that the big earthquake is coming. Any day now. I’ve done all that I can do to prepare for the big quake. I’ve taken several different types of disaster preparedness training courses. We have all of our supplies – in the house, in the car.
We live in a suburban area where crime does occur – car and home break-ins. What can I do – home security system, outdoor lighting, locking doors and shutting windows. We do what we can do.
A threat like a pandemic flu is a real test of our ability to deal with uncertainty. And so many things are outside of our control which can make life scary or exciting. I’m not suggesting that contracting the flu would be exciting…just that once you accept the uncertainty you can be open to joyous surprises as well as real challenges.
I wish I had more advice to offer. I am trying to be mindful…very, very mindful. Mindful of my actions and thoughts. I don’t want to get caught up with the panic and drama that can so easily happen when we’re faced with these overwhelming situations.
If you are listening and you are a caregiver or a person who doesn’t have a chronic health condition, please try to be extra mindful of others who are potentially more at risk. If you have any respiratory symptoms…maybe it’s just a cold…but know that being around someone like me…I’ll hear your sniffles, your cough…and I’ll get a little nervous. So, if you’re someone like K – with bronchitis – stay home to avoid passing anything on to those with less robust immune systems.
Get the flu vaccine even if you’ve never had the flu. Have you heard about herd immunity? If not, google it.
I came across a recipe to make your own hand sanitizer. Check out the podcast notes on Glass Half full for the link to the recipe. I’m going to make some.
Also, the 4 year anniversary for Glass Half Full is on March 16th. It’s a virtual party on Facebook and I promise we’ll take all necessary precautions so no germs are spread. The celebration begins at 5 pm Pacific time. There will be an interactive quiz with prizes so bone up on your knowledge of previous podcast episodes.
Well, not really. No podcast episodes for the month of May due to a very bad computer. Naughty as heck. She/he could have reminded me of their age (6 years!) and I would have paid attention…treated her/him as a respected elder…gone easier on her/him. But no! Poof!
So, I’m waiting on a new one. And like everything else now, it’s moving slowly…from China, or Japan. Who knows? Not much else I can do but wait.
Maintaining a regular exercise routine has been vital for my mental and physical health during quarantine; I put together this list of mostly free or low cost online resources.
If you want some evergreen, relevant podcast episodes, you might consider starting a mindfulness or meditation practice. Or prayer as a healing modality, which I believe can be akin to meditation.
So many things can be therapeutic; you know laughter can be the best medicine? Have you considered Sound Healing? I’ve seen several practitioners taking their work online.
My mental and physical clarity is enhanced by my daily walk through nature. Even if it’s just around the neighborhood. Every day I discover new natural and human-made curiosities.
One of my natural relaxing remedies — and the most downloaded episode of Glass Half Full — is explored here.
I hope you’re taking good care of yourself. Personally, I’m in it for the long haul; I’ll wait for that vaccination. I’ll miss hugging, traveling, and eating in restaurants but…I’d like to be around for awhile. Take care XOXO
